LymeNet Flash: Need LLMD live in NY...need diagnosis!

This is topic Need LLMD live in NY...need diagnosis! in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/27439

Posted by HopefulNY (Member # 46070) on :

Hi group! I've been severely ill since 1994 and had a bout of acute Lyme in the late 1990's. I'm testing positive for more bands now on IGG and IGM, and Need to get to an LLMD
as soon as I can.

Been suffering way too long not to check out Lyme and see if it's possibly the cause of my messed up body.

I'm in NY...heard the better dr's were out of NY and travel was necessary? Anyone know of Dr. C in Ny?

I don't know if that's true. Does anyone know of names they would recommend? I've been dx with everything but Lyme! Really need to start living!

Thanks so much for any info.🌺

[ 10-23-2016, 07:21 PM: Message edited by: HopefulNY ]

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out of state for their care.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posted by HopefulNY (Member # 46070) on :

Thanks hopingandpraying!