LymeNet Flash: Seeking llmd in western new york

This is topic Seeking llmd in western new york in forum Seeking a Doctor at LymeNet Flash.

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Posted by Bartenderbonnie (Member # 49177) on :

Seeking llmd in western new york

Posted by lymeandceliac (Member # 48492) on :

I'd desperately like to find one as well!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent with some suggestions. I don't know of any in western NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by the top LLMD, Dr. H titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by hopingandpraying (Member # 9256) on :

lymeandceliac - sent you some suggestions.

You should write a new post instead of adding on to an existing one, because most don't re-read old posts. That way, more people will see them and respond.