This is topic Please help Dying. Need Best Doc in forum Seeking a Doctor at LymeNet Flash.


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Posted by Emtlyme (Member # 43306) on :
 
MY current lyme doctor told that my case Is progressing to quickly and he no longer can handle the case.

I am looking for a place that I can just stay in the area for a little while and do there treatment everday.

I have progressive neuro lyme and mold
Maybe
sponogule
DR F in Nevada
Shea Facility
Dr J in Washington
Dr H in NY
Dr K in Washington state

My condition has been diagnosed as Frontal temporal dementia. I am only 24!!!!!!.
I need aggressive treatment by a aggressive dr.
I had done 3 months of IV rechepin with no single improvement.
Thank you
 
Posted by Robin123 (Member # 9197) on :
 
Wishing you all the best in connecting with someone good who can help you.

No idea whether this idea will help you at all - I have a hormone brain marker, a prolactin count, that is dropping back down into a normal count soon, so I've been treating my brain.

My natural anti-inflammatories that I'm taking daily are turmeric powder and mangosteen juice, both powerful anti-inflammatories.

I get turmeric powder in bulk at the health food store and dip empty 00-size capsules into it and take one in the am and one in the evening. I feel it taking down pain fairly quickly. I don't think one can OD on it.

I drink the Mango-Xan version of mangosteen juice as it is the most tart. Sold in health food stores and online. I drink around an ounce a day.

When I first started it, it stopped all Lyme eye symptoms in 24 hours, and it stopped constipation.

Other strong natural anti-inflams I've taken include noni juice and grapeseed extract capsules.
 
Posted by dbpei (Member # 33574) on :
 
Emtlyme, my heart goes out to you! I will PM you with a suggestion.
 
Posted by hopingandpraying (Member # 9256) on :
 
I am so sorry you are going through this. I don't know of any places to recommend to you where you can stay and receive daily treatment as you wanted, but sent you a PM with a suggestion.

Here are several threads from the past about Sponaugle Wellness Institute:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=123137;p=0#000000

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/24176?#000010

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/24492?#000000

About Shea Medical:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=022933;p=0

I don't know of a Dr. F in Nevada.

Dr. H (the top LLMD) in NY is not taking new patients and has a very,very long waiting list.

I don't know if Dr. K in WA is taking new patients. You would have to call to find out.

Maybe call the Lyme Disease United Coalition at (800) 311-7518. Website is: www.lduc.org They are very knowledgeable and might know of someone or somewhere for you to go and receive treatment.
 
Posted by Lymetoo (Member # 743) on :
 
I would try Dr K in WA.

If you mean Dr F in AZ .. no.
 
Posted by WPinVA (Member # 33581) on :
 
What about this place in Texas?

http://www.ehcd.com/

It doesn't look like they handle Lyme but they sound good for mold. Maybe if you take care of the mold, your Lyme would be much more manageable?

I don't have personal experience with them, but I did read that Dr. N went there for her own mold treatment.

I actually contacted them and they said they could get a new patient in within a couple of weeks!
 


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