LymeNet Flash: Western NY Doctor?

This is topic Western NY Doctor? in forum Seeking a Doctor at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/27693

Posted by Katie W (Member # 38417) on :

I'm hoping there are some new LLMD's in the area...
Haven't been getting anywhere with the few I've tried...

Thanks!

Posted by TF (Member # 14183) on :

I sent you names of 3 GOOD doctors. But, unfortunately, because of where you live, you will have to travel to see someone good.

It is worth it. Many do it. There just aren't that many lyme docs who know enough to cure someone. So, you have to go to them.

Posted by hopingandpraying (Member # 9256) on :

PM sent with names of LLMDs in different states.

A good LLMD will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out of state for their care.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by Dr. H, the top LLMD titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by Katie W (Member # 38417) on :

Thank you both!!! Looking into them!