This is topic Seeking LLMD in NC in forum Seeking a Doctor at LymeNet Flash.


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Posted by marcyb2910 (Member # 50000) on :
 
I am looking for a LLMD, preferably in NC, that treats chronic lyme besides Dr. P. I would be willing to travel to VA or DC. Thank you!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for VA & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out of state for their care.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NorthCarolinaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):

http://whatislyme.com/lyme-in-north-carolina/

https://www.facebook.com/pages/NC-Lyme-Advocacy/290956021030771

http://www.nclyme.net/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 
Posted by Tincup (Member # 5829) on :
 
To Marcy in NC...

To find a Lyme treating professional in any state please go to...

www.MarylandLyme.org

You will see a menu on the left that has "DOCTOR REFERRALS". That will take you to a site that has listings for your state and others.

There is also a "Help For You" Link on the menu. It has some cost reducing tips for tests, medications, insurance issues and other things.

Sure hope this helps. If you have any questions please feel free to ask.

Hope you are feeling better soon!
 
Posted by marcyb2910 (Member # 50000) on :
 
Thanks for your replies everyone. I have gone to the websites and got the LLMD lists for NC and have even called all the clinics to ask specific questions. I am really hoping to hear personal experiences from members who may have gone to one of these Dr.'s. Thanks so much!
 


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