This is topic Need Lyme Doc in Maine in forum Seeking a Doctor at LymeNet Flash.


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Posted by bellagirl (Member # 38026) on :
 
Thanks, I've been off meds for about 7 year now, but I am having symptoms again. Is there a LLMD in Maine I can start with? Thanks
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for ME.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in to sooner by doing this.

Check the online state Lyme groups at:

https://groups.yahoo.com/neo/groups/MaineLyme/info

Maybe they can help.

Some more resources (including Support Groups info):

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Maine/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 


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