I am very new to Lyme. I have had what was diagnosed as NDPH, a specific type of constant headache, for over 6 years.
After looking for some treatment I have found NO relief. I found a Dr. who suggested Igenex testing for Lyme.
My B. burdorferi IFA - G/M/A was positive and by Igenex standards my Western Blot IgM was positive and IgG was indeterminate.
By CDC standards the Western Blots were negative. The Dr. says I have Lyme, but I don't feel as though I have many of the symptoms.
I'm looking for a second opinion, specifically an LLMD. If I have Lyme it would be late stage for sure and the local hospitals won't see my case based on the test results.
I would be willing to travel a bit if necessary. Anywhere in Michigan or northern Ohio or Indiana would be worth considering.
Any ideas appreciated!
[ 04-23-2017, 10:49 PM: Message edited by: Kamaji ]
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for MI, IN, & OH.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information.
Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posted by Kamaji (Member # 50213) on :