LymeNet Flash: LLMD in Illinois/Indiana/Michigan

This is topic LLMD in Illinois/Indiana/Michigan in forum Seeking a Doctor at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/27867

Posted by sparkle (Member # 40844) on :

I just got back a positive Lyme Western blot test. I have been looking for answers to my health issues for over 12 years now. Having my Lyme test come back positive answers a lot of questions for me and why treatments I try never seem to work like they do for other people. Exp: thyroid med

I live in Indiana, but close to both the Michigan state line and the Illinois state line, roughly two hours to Chicago by train. Chicago would probably be best for me because driving on the highway is difficult.

Thank you for any help in finding an LLMD!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for IN.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. None in Chicago.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/IndianaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.kentuckyindianalymesupport.org

http://www.lymenet.org/SupportGroups/UnitedStates/Indiana/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by sparkle (Member # 40844) on :

Thank you!!