This is topic Live in TX...But Will Travel for Good LLMD in forum Seeking a Doctor at LymeNet Flash.


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Posted by peazy70 (Member # 50322) on :
 
Hi. Live in TX but need to find a good LLMD in my area of possible. I fight multiple co-infections, viruses, and stubborn case of long term prostatis. I need someone that can at least help me have some quality of life. Any help would be greatly appreciated.

Peazy
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for TX & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are. At least half of all Lyme patients travel out-of-state for their care.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Please read the following about LLMDs and Texas which was posted about TX:

"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.

Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones."

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.txlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 
Posted by peazy70 (Member # 50322) on :
 
Hi. Thank you for responding. I just sent Dr. S an email and will follow up in the morning. My only concern is that the web site says he isn't accepting new patients after July 16th.

Stay tuned.
Peazy

(editing out doctor's last name)

[ 05-18-2017, 02:35 AM: Message edited by: Robin123 ]
 
Posted by peazy70 (Member # 50322) on :
 
July 2016.
 
Posted by TF (Member # 14183) on :
 
I sent you some names.

Welcome to LymeNet! I'm glad you haven't given up.

This is what I have learned in over 14 years in the lyme world--the doc is the key. Can't emphasize that enough. The doc is the key to getting rid of this horrendous disease.

Many doctors treat lyme diease, but only a FEW know enough to get rid of it for a person. Your job is to find one of those few.

I know a few of them here in the eastern U.S.

If you can possibly get yourself to a top doc, that is what you want to do. It gets you the best chance to get rid of this horrendous disease.

You may want to read my post "What Makes a Doc Top Notch." LymeNet decided it was so good that they put it near the top of Medical Questions permanently under "Important Info About LYme and Cos.".

Here is the direct link to it:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/115161?#000001

So, get yourself a top doc and then let us know how it goes! We are all rooting for you!!!!

p.s. I know prostatitis is very difficult to get rid of, but hopefully good lyme and coinfection treatment is going to boost your immune system and do it for you.

I also strongly suggest you read and STUDY the Burrascano Lyme Treatment Guidelines found here:

http://www.lymenet.org/BurrGuide200810.pdf

There is no substitute for an educated patient when it comes to these diseases.

Burrascano's required exercise program (page 31) will boost your immune system so that you will not relapse. It is 1 continuous hour of weightlifting every OTHER day, a full body workout each time.

That is what did it for me.
 
Posted by Tincup (Member # 5829) on :
 
Hey peazy in Texas where everything is bigger, including your Lyme situation it appears! So sorry to hear that! Hope you are feeling better soon.

If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state). You may want to review options in states near-by also.

There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.

There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.

Hope that helps! Good luck!
 


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