LymeNet Flash: southern NY/northern PA

This is topic southern NY/northern PA in forum Seeking a Doctor at LymeNet Flash.

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Posted by seekinganswers505 (Member # 50460) on :

Hi,

I'm looking for a LLMD in the Southern Tier of New York. It is close to the PA border so someone in Sayre or Troy PA would be ok too.

Please help! Thanks in advance....

[ 05-25-2017, 12:58 PM: Message edited by: seekinganswers505 ]

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for PA & MD.

You should add "southern NY/northern PA" in the title of your post, so people will know specifically where you are looking. To do this, click the pencil/paper icon, make your change, then click "Edit Post".

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are. At least half of all Lyme patients go out-of-state to get proper care.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by seekinganswers505 (Member # 50460) on :

Thanks so much for all the information!

Posted by hopingandpraying (Member # 9256) on :

You're very welcome - glad to help.

Posted by Tincup (Member # 5829) on :

Hey Seeking,

If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state).

There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.

There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.

Good luck!