Hello - I am an adult, diagnosed 5x with Lyme and/or Anaplasmosis. The last 2 incidents were in the summer of 2016 (Lyme + anaplasmosis, confirmed via tick panel) and summer of 2017 (Anaplasmosis, confirmed via tick panel.)
I have just been seeing my regular MD, but need a pro to deal with unending muscle aches and fatigue. I do have excellent insurance coverage.
Thank you in advance for a recommendation via PM. I am very grateful for your help.
Posted by Tincup (Member # 5829) on :
Hey Betrick!
Welcome to LymeNet! Sorry you are feeling crummy. Let's see who we can find to help make you feel better...
You can go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states that have them.
Most will not take insurance, but if you check around you might find someone that does.
Good luck!
Posted by Betrick (Member # 50717) on :
I got a PM (thank you!) about a doctor in RI, but when I looked it up, it was a nurse practicioner. Really would like to see a doctor.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for CT & MA.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients travel out-of-state for care.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
There is nothing wrong with an NP. She can write scripts, has no MD ego, and consults regularly with top LLMD in the country. 90% of the patients who get an appointment with Dr H in Hyde Park get treated by an NP.
Posted by hopingandpraying (Member # 9256) on :
The NP in Rhode Island has helped many get better.