LymeNet Flash: EASTERN CT / RHODE ISLAND LLMD PLEASE

This is topic EASTERN CT / RHODE ISLAND LLMD PLEASE in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/28057

Posted by skribbles (Member # 50742) on :

I'm seeking references for MULTIPLE LLMD please. Recently diagnosed, first dosage of ABX ineffective. I have had allergic reactions to doxycycline. Willing to travel 50-60 miles. Looking for references in Eastern CT or ALL of Rhode Island. Thank you in advance!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for CT & RI.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. I don't know of any LLMDs in RI.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

Posted by Nancy2 (Member # 95) on :

PM Sent!

Posted by Tincup (Member # 5829) on :

Hey there to you in CT...

Welcome to LymeNet!

Please go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states.

Here are some ways to locate alternative health care professionals too.

https://sites.google.com/site/lymedoctors/alternative

Good luck to you!