Start a folder with everything medical related to your health. Get copies of all blood work, medical procedures, medical professionals seen, all medicines, symptom list. Take this to your 1st LLMD visit. Get your finances in order as Lyme disease can be expensive to treat. Learn why LLMD'S don't participate in insurances here;
Also, you must become your own health care advocate. Learn all you can about Tick Borne Infections. Utilize Lymenet's 'search' function for questions you may have. Feel free to post your questions in open forum and members will respond with their experiences. We will help you.
I will send you a private message.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for TX.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have too!). Patients have been able to get in sooner by doing this.
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.