This is topic Seeking a lyme specialist central PA in forum Seeking a Doctor at LymeNet Flash.


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Posted by 3 limes (Member # 8520) on :
 
Possiblity of reinfection years after initial lyme in 2005. The physician I saw for many years retired several years ago. Any recommendations appreciated.
 
Posted by Bartenderbonnie (Member # 49177) on :
 
Hi 3 limes

I am sending you a pm.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome back to Lymenet! PM sent for PA.

You probably know this information, but it is a very comprehensive post full of good information I've put together over the years.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help. They would know better about PA.

Some more resources for you (including Support Groups info):
www.lymepa.org

http://whatislyme.com/lyme-in-pennsylvania/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy it online.
 


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