This is topic Need good LLMD IN MI or nearby states in forum Seeking a Doctor at LymeNet Flash.


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Posted by lucecaboose (Member # 13058) on :
 
I wasn’t allowed to save my edited post, even though I’m a registered user.

So I rewrote it and I’m posting it again.

I was told in a PM to edit my post because she thought I was asking for just names and not recommendations.

I thought I was asking for recommendations. If that wasnt clear, I apologize.

She also said to break up my paragraphs into one or two lines.

She also thought I was being too picky because I didn’t want a doc who was insulting and angry.

I just won’t end up going, then. And I really need a Lyme doc.

So:

My LLMD retired and I’ve been looking for a new one.

I had an appointment with a local one and we did not hit it off. She was angry and insulting.

I need someone I can talk to and ask questions of. I’ve had three LLMDs in the past 20 years…died, retired, retired…

and I’ve been able to ask questions and explain things to each one of them.

Also, this doc charges $800/month for treatment. And the other local doc charges more.

I am willing to travel out of state. They don’t have to be in my area of Michigan, or even in Michigan at all.

My tick bite was in 1999. I got sick in 2002. Was misdiagnosed until 2007.

Have been on IV abx twice. Each time, 9 months. I felt better but when I went off, even if switched to oral abx, I was back where I started.

No remissions.

So, I am asking for recommendations for a good LLMD and I will travel.

Thanks for your help.
 
Posted by Bartenderbonnie (Member # 49177) on :
 
lucecaboose

You can request a LLMD through Global Lyme Alliance here;
https://www.globallymealliance.org/lyme-patient-support/find-medical-professional/

You can request a LLMD through ILADS ( International Lyme And Associated Diseases Society) here;
https://www.ilads.org/patient-care/provider-search/

These are simple e-mail formats that you fill out and they contact you with LLMD’s closest to you. Any referrals should be vetted before committing. To do this, google for patient reviews.

You can request a LLMD in any state.

Also connect with your Lyme support group for member’s first-hand experiences with LLMD’s in your area. Here is the Michigan Lyme support group;

https://rawlsmd.com/lyme-support/united-states/michigan/michigan-lyme-disease-support
 
Posted by hopingandpraying (Member # 9256) on :
 
lucecaboose - I feel I need to address this post because things were misconstrued. I have been helping people here on LymeNet for many years and have always tried to provide information to others which I have collected and learned while looking for help for my own son.

First of all, your post was not deleted. I found it under "Need LLMD Grand Rapids,MI area" in "Seeking a Doctor" just a couple of posts down.

Here is the link:
https://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=028831;p=0

You most certainly need a good LLMD and are entitled to one who will treat you properly. They are out there. You wrote "picky", not me.

I only meant that you may not be able to find a LLMD who is able to completely fulfill all your wishes, not that you were being picky. A good one most definitely will be able to help you and travel may be needed (we travel three hours one way with our son).

I did send you some names of very good ones in neighboring states.

We always recommend finding out more information about a doctor, not just getting names from a list.

If you get a name then post in "Seeking a Doctor" and title it, "Need Info About Dr. _ (last name initial only per LymeNet rules and state only (no towns/cities) and ask for personal references if they are from that particular doctor's patients or if anyone has information about them. That is the best way to find a good LLMD.

Contacting your state's support groups will also help.

Links for MI Lyme Support Groups:

www.mlda.org

https://www.lymenet.org/SupportGroups/UnitedStates/Michigan/

Finally, I asked you to break up the post into 2-3 sentence paragraphs, because others cannot read large blocks of text due to neurological problems from Lyme. This had nothing to do with getting names and recommendations of doctors.

I wish you well on your healing journey.
 


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