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Posted by Peimomma (Member # 45177) on :
 
Greeting All,

I moved to AZ 9 years ago after successfully treating my Lyme. I had a fantastic provider in Seattle but have not searched in AZ.

I have a good friend that is suffering the many symptoms of LD and of course her PCM ran the “test” and it was negative. My hope is someone has a name or names we can get her seen.

She is an adult in her 50’s, with muscle and joint pain, diagnosed with Fibromyalgia and chronic fatigue. I knew her before the cascade of symptoms and she was very active and fit, she is now a shell of who she was. Any assistance would be greatly appreciated.

Peimomma
 
Posted by Bartenderbonnie (Member # 49177) on :
 
Hi Peimomma

So sorry to hear about your friend’s suffering.
Thank God you recognize the symptoms of Lyme disease to be able to help her!

I must tell you that this search was one of the hardest for me.
So this will be a long post.

This is what Lyme patients are up against in Arizona.
If you have Lyme disease in Arizona, you got it from traveling!
https://www.axios.com/local/phoenix/2025/08/18/lyme-disease-arizona-tick-season

Here’s the data showing only 2 Lyme Disease cases in 5 years! 2019-2023

Zoonotic Diseases:
Animal-related
Diseases of animals that have the
capability of being transmitted to
humans. Animals do not have to be
sick in order to transmit disease.
2019 2020 2021 2022 2023
Amebiasis 12 2 8 8 4
Brucellosis 2 4 5 0 2
Cysticercosis 2 5 1 1 2
Leptospirosis 0 1 0 0 0
Lymphocytic Choriomeningitis 0 0 0 0 1
Melioidosis 1 0 0 0 0
Psittacosis 1 0 0 0 0
Q Fever 3 1 3 3 2
Tularemia 1 0 0 1 1

Vector-borne Diseases:
Flea, Insect,
or Tick-borne
Diseases that need a flea, insect,
or tick to be transmitted to
humans and animals.
2019 2020 2021 2022 2023
Babesiosis 0 0 1 1 2
Chagas 3 3 2 1 5
Ehrlichiosis 1 0 2 4 6
Lyme Disease 1 0 0 0 1
Rocky Mountain Spotted Fever 4 2 1 1 1
Tick Borne Relapsing Fever 1 0 0 0 0
Typhus Fever 1 0 1 0 0

“Although Lyme disease is not endemic in
Arizona, there are still cases in Maricopa
County from residents who have traveled or
relocated to Arizona from an endemic area.”
NOT TRUE!

Here’s a researcher in Arizona that wants your TICKS for mapping and identification of pathogens for real world data and science!

https://www.azcentral.com/story/news/local/arizona-science/2025/07/12/arizona-researcher-wants-tick-samples-for-disease-studies/84537910007/

The Great Arizona Tick Check
https://extension.arizona.edu/programs/great-arizona-tick-check/help-us

See The Difference In Data
https://www.tickcheck.com/stats/state/arizona/lyme

Most Lyme providers in Arizona are ND’s, or Naturopathic doctors.
They have prescribing rights for most meds except schedule 1 and 11 pharmaceuticals. Their main treatment protocols are natural remedies and non-pharmaceuticals. Such as IV nutrients, biofeedback, hyperbaric oxygen, cranial stimulation, ect.

Which is fine unless you have multiple untreated infections.
Especially in the early stages of illness.

Your friend should have the option of a provider who offers both non-pharmaceuticals and pharmaceuticals. After specialized testings, a treatment protocol would be personalized and discussed and agreed to by both parties.

I wanted referrals to LLMD’s in Arizona to have these requirements for your friend to choose. Being today is Saturday, it was hard to find out each practice’s services offered.

Start by gathering LLMD’s through these sites.

You can request LLMD’s through Global Lyme Alliance
https://www.globallymealliance.org/lymedoc

You can request LLMD’s through LivLyme Foundation
https://livlymefoundation.org/resources/doctors/

You can request LLMD’s through ILADS
(International Lyme and Associated Disease Society)
https://www.ilads.org/patient-care/provider-search/

You can request LLMD’s through Lyme Disease.org
https://www.lymedisease.org/find-lyme-literate-doctors/

These are simple e-mail formats that you fill out and they respond with LLMD’s in your area. You must research each LLMD referred. To do this, google for patient reviews and call each LLMD provider and ask what their treatment protocols entails.

Arizona Lyme Disease Association
https://www.azlyme.org/Support%20Groups%20Arizona.htm

Tucson Lyme Support Group
https://www.facebook.com/LymeSouthernAZ/

Sending pm for Arizona
Good Luck To Your Friend 💚

[ 08-23-2025, 04:17 PM: Message edited by: Bartenderbonnie ]
 
Posted by Peimomma (Member # 45177) on :
 
Thanks so much Bartenderbonnie,

My friend like myself was in the military. I believe my infection came compliments of the US government after multiple vaccines pre deployment to Desert Storm. I did extensive research when I returned from the was and my health declined. I found Dr Garth Nicholson posting a lot of great information on what Gulf War Illness has in common with Lyme disease.

I will do some research on what you have provided and then present the information to her to see if we can get her the best testing and or a provider that uses symptoms plus tests to diagnose and treat. I used mHBOT to cure mine after 20 plus years of chasing the ghosts of Lyme.

Peimomma
 


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