posted
Is there ever someone who goes completely back to normal after Lyme? I'm starting to wonder even after checking the success stories. Normal is a loose term... I just mean pre-lyme normal (but with much more appreciation for sure!)
I've had Lyme disease for six years with all kinds of treatment (different oral and suspension ABX before and after 3 PICC lines) for the past eighteen months. It feels like there's a sort of a milestone coming up ahead but I'm so sick and tired of being sick and tired.
I can never tell if I should be happy that I can walk or upset that I can't get my butt to high school. (I'm a sophmore down here in Lyme-Flexo-Nutso home school) I'm doing loads better physically then I ever have but my fatuige is staying the same if not growing.
So do I wait another year or two and pray that the right ABX will get this cr@p out of my system or will Lyme ALWAYS be a part of me? Posts: 28 | From North Carolina | Registered: Jul 2006
| IP: Logged |
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
If its any consolation, Im back to normal. I was sick for 9 months before being diagnosed and going into my 4th YEAR of treatment, but Im back to normal- driving, walking, college (FINALLY finished that), playing with the kids, etc.
IT DOES get better. Don't get me wrong- I still have a down DAY here and then, but thats about it.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
| IP: Logged |
My life is also very productive. I've been in treatment for 2 years. I work out 5-6 days a week, work and do a lot with my daughter whose almost 10.
My last lingering symptom is weird sensations in the legs and some neuro stuff that is very stubborn. I highly suspect babs and am going to hit ART very hard.
My 9 year old also has lyme and is doing very well. She's been back to a full schedule with activities and school for a year.
There's light at the end of the tunnel. Keep sticking with treatment. My lyme goes back almost 16 years so I'm extremely chronic but have hope of getting rid of all symptoms.
Posts: 738 | From Colorado | Registered: Oct 2004
| IP: Logged |
My son is a sophomore and goes to school for one class - biology. He has homebound instruction for 3 other classes. The school provides a teacher for 4 hours per week.
He has been sick for a long time possibly since birth and has recently (finally) started to feel better.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
| IP: Logged |
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Alexis, I am not a Dr, just a mom that has been baptised by the fire of tick borne diseases plus.
I think once anyone is well, or mostly well, that the bacteria may always lurk around just waiting for an opportunity to strike back. So perhaps the best hope is for a life long remission.
I also think that no one abx will do the trick and some of them cause some major stomach and yeast issues if you are not careful..Not that they are not important.
I have come to believe that one of the most important features to this fight is to bring your body back into balance and to make sure you are being super healthy in your food, drink, and supplement choices. Do not neglect good probiotics.
It is also essential to find some form of exercise to help you physically and mentally and unless you are on the Marshall Protocol, get some sun daily to keep your Vit. D stable..These buggers seem to go for the Magnesium, Calcium and others..
A few on the board have developed osteoporosis..My daughter was diagnosed with it at age 16..So protect your bones, etc..
If you can somehow figure out how to boost your immune system, you will feel better.
Our daughter has not tried rife or the ozone sauna, but I am very interested and have done a little research for both..I think some people are convinced that one or both may be important to returning to normal..
And realize that these diseases are not fair, no one should have to go thru this, especially not you and the other children, but be as strong as possible...
And when you are weak, make sure you find something creative to do..Have an art tablet handy.Or even a hunk of silly putty..Or journal..Get your emotions out and redirect it to something positive..I have a friend on here that told me she felt bad recently and picked up a marker and drew all over herself..May I suggest a washable marker however..Ha..
Crime could give you some good advise..She has really been fighting a war with these diseases.
And perhaps the most important, is to keep a few good friends..Find time for them and try to do fun things with them..Push yourself. Make yourself find time to laugh..Hugs..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
| IP: Logged |
char
Frequent Contributor (1K+ posts)
Member # 8315
posted
I am sorry, honey.
I KNOW that this cardiologist is going to help you get rid of some of the symptoms that are holding you back.
I don't think I told you this, but if when you get the blood pressure thingy treated, you should be able to tolerate the abx that you are wanting for complete nukage and annihilation (sp?)! And to get out and about more with your fabulous self.
Yours, Char
[ 09. September 2006, 11:25 AM: Message edited by: char ]
Posts: 1230 | From US | Registered: Nov 2005
| IP: Logged |
posted
Alexis- I'm a senior in HS, and was supposed to graduate last yr. Obviously, Lyme had other plans. I lost the 2nd semester of my 1st Jr yr to Lyme and was only able to attend one class last year. Like you, I'm recently off IVs (had 3 PIccs, too, thanks to stupid clotting!) and am on orals. I am attending more classes this year, but have far less energy than I'd like. I haven't been headache-free (any ache actually) since Jan 05. Although I obviously can't answer your question, I definitely CAN relate, and I just want you to know that we're in this fight together, in a sense. Your physical endurance is probably nil after being so sick for so long, and though you're mind is probably ready to do anything, your body is telling you to take it slow. I've found that the best thing to do is to get out of bed for a bit each day and build up your strength to where you can do as much as your energy/pain level will let you. And when you get tired, nap! Idk if it helps in the long run, but it seems to me that it's the best thing to do. And so you don't go crazy, do a little reading, watch a little tv, or whatever, to stimulate your mind a bit. Hope it helps, love,from Lymie to Lymie, Emily
-------------------- -Em
"Thank you, Oh Lord, for giving me the power to control my pain" Posts: 59 | From Missouri | Registered: Sep 2006
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Yes you can get back to normal. Many people have and the fact that you are young is a plus.
I know many people who are "normal" now and living happy productive lives after being very sick.
Sometimes on lymenet people get well and then get busy in their lives and don't come back to lymenet. I can understand this and am happy for them.
It may take more time than you would like and
you may have to be on a maintance dose now & then to keep it in remission.
So hang in there
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
posted
Thanks so much, everyone for the replies. Especially the encouraging stories. I was having a hard day (still am actually, I guess that means it's more like a hard week).
I can't believe I'm not the only one who had three PICC lines, Emily! My skin was being stupid throughout my second and third ones.
I haven't tried injections yet for fatuige but I'll tell you: just thinking about injections makes me fatuiged. So I think that's out of the question.
I'm really hoping once we get fully moved (we're right in the middle of it now) I can do peripheral IV stuff and that will kick-start my health. Here's to hoping!
Posts: 28 | From North Carolina | Registered: Jul 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[group hug]](graemlins/grouphug.gif)
![[bonk]](graemlins/bonk.gif)
So I think that's out of the question. 
Printer-friendly view of this topic