posted
After three years of battling lyme and deteriorating eyesight, I woke up two weeks ago to discover I am now completely blind in my left eye. Have been working int the past with Dr S., lyme neuro opthamologist ,and local eye groups to no avail. Was wondering if anyone else has or knows someone who has lost their sight to lyme and coinfections, or have had some degrees of visual impairment. Thanks.
Posts: 719 | From Delaware | Registered: Jan 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I have Lyme eye/brain problems also. I have also known people who have lost their vision and regained it. Sooooooo..
You said you had worked with others in the past.. but not recently. Soooooooo..
posted
All tx modalities that Dr S recommended have failed and there is damage to both optic nerves. I was just wonderinmg if anyone else have had these problems. Thanks for the advice, Tincup.
Posts: 719 | From Delaware | Registered: Jan 2006
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Sorry to hear of your circumstance skater,,,
Have you tried,,,OR are you taking Ocuvite AND lutien??
I heard they can help with sight probs, going to try it myself soon as I get to the store!!!
KEEP treating the disease underneath and hope!!
I forget ,,,do you have bart also??still--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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bettyg
Unregistered
posted
skater, I'm so sorry to read of your latest eye loss news!
this thing hit you so hard, and you've been everywhere I know.
yes, other folks on here have commented a lot lately about their starting to lose eyesight.
glad tincup replied since she's lost majority of her sight as well.
up so others who are effected can share info with skater, my very DEAR friend!
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
iceskater,
I'm so very sorry to hear you are going through this. I actually have lost vision in both eyes but it's always come back in a day or two.
As others have said, I would definitely call your LLMD. My LLMD felt it could have even been a side effect to one of the meds I was on at the time, but I still had it happen afterwards, so after my horrid horrid panic of the first time and wondering if I'd ever see again, I have found in MY case, it was part of a horrid herx.
Eye sight is so valuable, so I hope it's just been a herx for you as well, but I would get in to see your doctor asap, no matter what.
Good luck and keep us posted.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Skater...oh, Skater, I was so sorry to hear this!! Just know you're in my thoughts, and hopefully, there will be something you can do to reverse or at least help this.
You take care, Skater...
Andie
Posts: 2549 | From never never land | Registered: May 2005
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posted
Ohhh no!!! I'm so sorry to hear about your eyesight. I hope you get it figured out, and that it is fixable.
Your Lyme buddy,
Draba
-------------------- Really tired of being sick. Wanting to go to college and have a life. Really happy that I have a puppy. Posts: 66 | From My room | Registered: Feb 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I had damage to both optic nerves.. very noticable on tests. I was given.. FINALLY.. IV Rocephin.. and they improved. That was also VERY noticable on the tests.
They are now not perfect.. but it stopped more damage and reversed some of it.
posted
My eyes were really bothering me before 8 months of IV Rocephen.
Now I am just at high risk for macular degeneration-so I still wear my sunglasses all the time-as advised do eye drops for blepharitis, and keep track of the flashes-which signal problems with the retina.
But I am sorry to hear about the damage to your optic nerve-that's a bit more advanced I'd say. Sucks royally.Crap.
posted
My eyesight has suddenly started deteriorating in my right eye and I'm scared. I just contacted my LLMD and am awaiting a response, and I started doing the Stephania eyewash recommended in Healing Lyme.
I was reading that in syphillis, sudden vision loss can happen due to a herx and can be very serious (it sounded irreversible). On the flip side, Lyme itself can cause vision loss and that seems to be treatable with antibiotics, according to the studies I read.
I am so sorry you're dealing with this.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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