phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I will be leaving in the morning to go see my lyme friendly doctor. I am anxious to see the doctor but the trip 6 hrs. is scaring me. Mainly because I feel so bad, with that comes the anxiety and too I am agoraphobic.. We will be spending the night and I will see the doc Tues. morning. then the long trip home ... When you are so sick how do you do this?
Did any of you feel this way?
Posts: 1058 | From VA | Registered: Oct 2010
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
My daughter's LLMD is four and half hours away...it used to be an airplane trip...so I am thankful we have doctors much closer now.
She had a hard time going too...physically not well, afraid to be out of the house and around people...there were times when she did not even want to be around her brother and sister, the ones who love her...she just could not deal with it all.
She would have to literally "talk" herself into going because of the fear and physical limitations.
But, she went because she did not want to keep on the way she was. She knew if she did not seek help that she would always be terribly sick, or possibly worse, even, and she braved/s all the trips because she had a goal to get better.
You have to keep your eyes on the prize...getting treatment so your future will be better than your today.
I will pray for you...that the Lord will help you...that you can trust Him to take care of you.
Sue
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
I've been praying for you non-stop about this.
The anticipatory anxiety is going to try to get the best of you. That is the worst part of the whole experience.
Try to focus on the END result, and seeing yourself back home after the appointment, with a treatment plan and hope.
Tuesday night will be here before you know it, and you will be safe and sound and ready to do this.
Posts: 1142 | From South | Registered: Dec 2010
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Thank you mom and hambone especially for your prayers...I can't seem to find the words to pray. I too realize how I am over reacting but seems I can't help it..
hugs, phyl
Posts: 1058 | From VA | Registered: Oct 2010
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
not sure what helps you...but taking food with me and eating in the car helped.
traveling back roads and taking it slow as the traffic and fast movement is too much at times
taking excedrin and drinking coffee helps me for some reason although it is not recommended.
but, since it helps me get there that is more important to me.
Having a pillow for me head and recling a bit in the seat helps me.
Good you are leaving the night before. That helps too.
Not that i do much each day but when getting ready to travel staying down as much as possible helps too.
It use to take me a week to pack as I would need to do it a little at a time even for an over night trip.
I can't listen to the radio and I wear what people wear that shot guns at the gun range to help cut out sound.
But, it does not help with low decimels.
Sun glasses to help with light sensitivity
I get dehydrated so lots of water or something to help with that. I have yet to find an electrolight drink without sugar that is easy for me to get down.
Sugar makes me worse.
I know some that lay down in the back seat. That usually doesn't work for me..not sure why but I have been sick enough I needed to do this.
Other times, the trip went very well and it was really good to be out of Dodge so to speak.
Most of the time in fact.
also the sound of the fan of the heater and air conditioning makes things worse.
Quiet...need lots of quiet
I have a feeling all will go well and it will bring you hope.
I also would recline in the car until the doc was able to see me or lie on the waiting room floor as sitting upright doesn't work for me
Make sure you lie somewhere you can get to a chair easily to pull yourself up
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Phyl, I felt like that when getting ready for my first long trip to LLNP on Feb. 5th. I just did not allow my brain to give me any other option. Like they said above, keep your eye on the prize, keep your mind focused on actually being able to talk to a doctor who has a clue about Lyme. Keep focusing on your chance to finally tell your symptoms to someone who won't say, they see nothing wrong with you - but one who will order the correct tests to confirm exactly what TBD's have been wreaking havoc on your life for so long. You just cannot allow yourself to think about anything else, forget the long ride, forget the whole people thing, just for now you are only allowed to think about the chance to finally begin to have someone who can really treat you and knows a thing about your illness.
Beagle
Posts: 348 | From MA | Registered: Dec 2010
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posted
That's true.. focus on what you want and NEED!
Good luck and be safe!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I am so ashamed.. I sound like a big baby you would think I was flying to Asia for a heart transplant. I have even increased my xanax.
I realize this but the anxiety is still with me. Would you believe it has taken me all day to pack for an over night stay..
Tks guys I know I have to do this for me and my family.. So will need your prayers for the anxiety of traveling, going to a strange place most of all a good doctor with answers..
hugs, phyl
Posts: 1058 | From VA | Registered: Oct 2010
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I really hope you got some good feedback on the doctor you are seeing. it would be heck of a waste if the doctor stinks. I will pray it goes well! Good luck.
Posts: 3905 | From USA | Registered: May 2007
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posted
I know.. I hope this is a good doctor who can help you!
Good job, phyl!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying for you, phyl!!!
To keep your mind off of your own anxiety, could you say a few prayers on the way for me and my son?
I am traveling on Tuesday to see my son on an Army base...he just returned Friday from one year in Iraq....could you pray for safe travel for me and decreased pain? Thank you!
If all goes as planned, he will be able to return home with me on Wed eve.
Lord, please give phyl a sense of peace that surpasses all understanding.
Please comfort her and calm her, so that she may have an easy trip to and from her first LLMD appt.
Lord, please give phyl the hope that she needs and guide her towards healing.
Allow phyl to feel the total love of God, her friends and family which will give her the strength that she needs.
I pray this in the name of the Father and of the Son and of the Holy Spirit. Amen
My advice:
pray as often as you can
keep your mind busy with things so you will not think about your anxiety
take things that will help you be comfortable on the trip
focus on this being a positive, see this as the beginning of your healing....exciting!!
and again....pray calming words over and over.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Dekrator, I am so happy that you will be seeing you son .. YES, I will certainly pray for you and your trip.. This is so wonderful that he is returning home to you and safe. Thank him for his services and you two have a happy and great visit.
Well, this is the day about to depart.. Seems no matter what I do I am so scared of leaving the house to go out of town.. Anxious to see the doctor, I think. Going down today and spending the night ..
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
It is OK to turn back if you can't travel. I had to do that twice. Once 1 hr in on Angel flight and once about 3 miles from home ...a friend was driving.
I think it was her car that was small and did not cut out road noise and was too much.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Good luck, Phyl
Thinking of you...You CAN do this!
I am praying for you.
Posts: 1142 | From South | Registered: Dec 2010
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Good luck Phyl, I'm praying for you now
I'm always an emotional wreck when I have to travel to see my LLMD. The first trip was the hardest. Thank God for my mom, she drives the whole 14+hrs both ways. I don't know how she tolerates me at times.
I was so nervous on my first trip because I worried that we would travel so far to see this LLMD then he'd turn out to be just like all the other doctors who said that I was too sick to help. Yet I was hopeful that he might be willing to search for answers and try whatever it took to help me feel better.
Thankfully God heard my prayers, he's listening to yours too.
posted
I have complete confidence in you and know you will be able to make this long trip.
Please keep us advised on what the dr. says.
Saying prayers for your journey today.
Posts: 412 | From Virginia | Registered: Sep 2010
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Thinking of you today, Phyl.
I so hope you are getting the much needed help you deserve. You were the first thing that popped into my head this morning when I woke up.
Posts: 1142 | From South | Registered: Dec 2010
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