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» LymeNet Flash » Questions and Discussion » General Support » Fox, CBS, NBC, ABC News Media Cry out to Help Us with Chronic Lyme Disease

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Author Topic: Fox, CBS, NBC, ABC News Media Cry out to Help Us with Chronic Lyme Disease
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

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http://www.facebook.com/groups/352102034865947/

If you belong to Facebook, please ask to join the group by using the Link above.

Trying to get everyone share their stories of how sick they are, what they have gone through, how they've been turned away from Mainstream Medicine, How nothing is being done Research wise., etc.

The group is a closed group. No one outside of the group can see your posts. It will stay that way. When enough stories are posted, I will attempt to get the media to come to the page and bring us help.

No guarantees, but an effort to be recognized.

Also, it would be nice if any of you can help me spread the word of the Lyme disease National Registry I started at: Http://ldnr.us

I don't care if you use your real name. I do require an email verification before your data is approved and entered into the database. This is done to give the site credibility. Yet another attempt for the cause.

Best to everyone,

Gary Engelman, BSN, RN

Posts: 1227 | From District of Columbia | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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That's a good idea!

I can't help since I found my LLMD by accident. He diagnosed me. No one turned me away... they just misdiagnosed me.

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--Lymetutu--
Opinions, not medical advice!

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Keebler
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Gary,

so that you don't have to reinvent the wheel, you might want to team with one of these lyme advocacy groups. I know they have similar efforts.

Lyme Disease.org - http://www.lymedisease.org

Lyme Disease ASSOCIATION - http://www.lymediseaseassociation.org

Tick-Borne Disease Alliance - http://tbdalliance.org

Lyme Research Alliance - http://www.lymeresearchalliance.org/
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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