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This topic has been moved to Medical Questions.     next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » New diagnosis

   
Author Topic: New diagnosis
Rachelp
Junior Member
Member # 39747

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Hi, I was just diagnosed with late stage lyme disease about a week ago, although I was originally tested about 6 years ago. I have pretty severe gastroparesis so taking oral antibiotics is going to be a challenge. Does anyone have any experience with this or some helpful hints on how to cope with the antibiotics. I am already feeling very sick and sore after a week of amoxicillin at a very low dose. Thank you.
Posts: 3 | From Bandon, Oregon | Registered: Dec 2012  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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Welcome to LymeNet (but so sorry for the reason you are here). I hope you find what you need here.

Sorry, I can only read a few words in the first and in the last line. My eyes due somersaults
with more than about 3.5 lines of solid text (for some reason, if text hits the end of a fourth line, it just turns to a swirl of grey patches -

so I'll leave it to others who should be able to read and to answer.

I do see (from your last line) that you are having trouble and feeling sick and sore from treatment.

Liver support is vital. Is that on board?

As you are in Oregon (where there are no LLMDs) I assume you are either seeing a LL naturopathic doctor (and if they are truly LL should have you on liver support) . . .

. . . or seeing a LLMD in California (as you are in Southern Oregon).

Either way, I wonder if you have the liver support you need. More detail:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.


http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP & ADRENAL SUPPORT
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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"gastroparesis" sort of leaped off the page and caught my eye. Lots of detail about that here for you:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=119808;p=0

Topic: Treatment for Gastroparesis
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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While you say you've already been diagnosed, there are some links here that offer basic treatment information - and some just for a good reference library of sorts.

Be sure to see Burrascano's treatment guidelines for the self-help sections, too. In the last links set below.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.


http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease

=============================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What ILADS is & WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

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hi-it is very slow here i guess cuz of holiday and weather

please keep coming back-the ones with your problem will chime in

keeb has given you a lot to start with...try not to get overwhelmed

lyme is complicated-docs dont agree...but here you will find a huge amount of experience

some docs will say you must take high dose abx

others strongly believe starting at very low dose is fine...even better than herxing badly. that is hard on you body

i did high dose abx in the beginning but later with certain drugs had to start with just a crumble...as long as i was herxing i kept on...in creasing a tiny bit. i had great results with both those drugs

if you want to focus in on your specific problems you can use the search at the top of the screen. its in tiny letters under post a poll

good luck. see you soon...im in a storm right now....

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Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

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moving to medical

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2682 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
   

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