Please feel free to share this info. We need patients to be informed about what those who elected themselves kings of the Lyme castle are really doing with NIH grant funds, and for this craziness to stop.
hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Even my own neurologist falls in to the 3 blind mice category. While he acknowledges I had Lyme and while he continues to tell me that perhaps retiring would be good for my health,
he also marked that my chronic Lyme Disease as "resolved" on my medical chart. What does he think "chronic" means?
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8976 | From Illinois | Registered: Aug 2004
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Their paper is stupid and your article is great, Tincup.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Looks like someone jumped on the fake news bandwagon!
Super pathetic!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6213 | From Columbus, GA | Registered: Jul 2004
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Just see the way these authors are writing English.
I swear that my 13 year old daughter, whose mother tongue is NOT English, can write better than this 'paper'!!
Look what they write!
- 'fake news'
- 'no better than a coin toss'
- 'fake research'
- 'fake blood culture'
- 'fake diagnosis'
- 'a real shame'
????!!!
Do you think they would pass 6th grade English tests by writing a SCIENTIFIC report repeating the same word - 'fake' - so many times?
I wouldn't accept that as an English teacher.
That student has to come back to primary school, and learn again the differences of a 'report', a fairy tale, a description, a narration etc,...
... and that they should not be employing opinions in reports, only facts.
And absolutely not words like 'fake', 'a real shame', 'a coin toss'!!!??!
We follow the UK English program at home, and that is OUT of question for a 11, 12 old year student!
They wouldn't get even a D in middle school!
Where are their proofs in their 'scientific reports'? Not a single proof there either, only opinions.
That's in between D and E, for a 12 year old!!!
It looks more like a middle school article, where a group of jealous students complain of other groups because 'they use fake arguments', and then 'get the teachers and school staff to like them more than us'.
"Please, headmaster and teachers: don't listen to the fake students! Listen to us, because they are 'fake', a 'shame', we are 'real', and nice people!" Posts: 6199 | From Brussels | Registered: Oct 2007
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Tincup, what a marvellous piece you have written refuting that rubbish....bravo!
Posts: 1647 | From UK | Registered: Nov 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
You all are so RIGHT, and again you are so kind. Thank you very much for the nice thoughts.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I've seen several responses written by doctors so far, and another one (very good) by an advocate is shared below. The links embedded won't show up here. Sorry about that!
(I edited out the authors email and personal address for privacy reasons.)
False and Misleading Information about Lyme Disease
Eugene D. Shapiro, M.D., Phillip J. Baker, Ph.D., Executive Director, Gary P. Wormser, M.
March 4, 2017
The American Journal of Medicine 3615 N. Prince Village Place, Suite 181 Tucson, Arizona 85719 Attn: Editorial Board
To the Editors of The American Journal of Medicine,
Lyme disease is capable of producing sudden death with no warning signs; [1,2,3,] heart damage requiring transplant, [4] paralysis with seizures, [5] Lymphoma [6] and persistent infection after antibiotic treatment [7, 8,9,10,11] along with congenital transmission [12] and ability to create wheelchair bound patients [13].
The last time we recognized a disease with this potential to cause serious harm, (Zika) the CDC wanted 1.8 billion for research. [14]
The authors of this manuscript have compared Lyme disease to the aches and pains of daily living. There are no Public Service Announcements informing the general public that you could become horribly disabled from Lyme disease.
Quote from Senator Richard Blumenthal:
"Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease”
Source:
In regards to laboratory testing, please see the following quote from Dr. Kenneth Liegner:
“In 1991 the Lyme disease organism, Borrelia burgdorferi, was grown from the cerebrospinal fluid of my patient Vicki Logan at the Centers for Disease Control in Fort Collins, Colorado despite prior treatment with intravenous antibiotics. Her case made the front page of the New York Times Science Times in August of 1993.” -Kenneth Liegner, MD
Source:
Vicki Logan’s CDC Fort Collins Positive CSF Culture Report:
What we are dealing with here is an antibiotic resistant/tolerant superbug but the focus over the past three decades (as seen once again in the Shapiro article) has been to discredit the sick and disabled along with the practitioners attempting to help these patients as opposed to finding new antimicrobials effective in eradicating all forms of the Borrelia spirochete; L-forms, round bodies and persister cells. [15]
Shapiro and colleagues claim that: “Lyme disease patients who have been infected by B. burgdorferi for many weeks or months are almost invariably seropositive by 2-tier tests.”
Please see the following letter (And attachments) addressed to the World Health Organization regarding faulty/misleading antibody tests for Lyme disease.
11th email to the World Health Organization: ________________________________________
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Sorry...
The rest of the letter has tags not permitted by LymeNet in the links and there are too many to go one by one to pick out ones to remove, so they were all deleted.
However, all statements made above and continuing were fully documented.
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