posted
there have been so many posts lately that i dont even know where to begin explaining things to people, so unfortunetly i have not been posting to help shed light on the issue. there are so many posts to read i have just felt overwhelmed. i know there are those on the forum who are doing a very good job helping show others the truth. many however have formed opinons even though they may not know what mycoplasma is, or that it was manufacuted and worked on at plub island accross from lyme where the outbreak started. they most likely have never been tested for mycoplasma even though all of the serious LLMDs know that mycoplasma is very serious and most likely the cause for many cases of chronic degenerative diseases. i have been sick for seven years and have been to many doctors. the doctors i have seen most recently have all been heavy weight LLMDs. one is a co-found of ilads. they dont come out and tell anyone about any of this, but after i figured it out myself, i got varying levels of agreement and co-operation. the very least i got was complete agreement but nothing else, no volunteering information. although i did get my mycoplasa test for 13 strains done here. the nurse would also come by a lot to change my dressing for the iv and he was a nice guy who knew about this as well. at one point he started doing mycoplasma pannels on the initial lyme and other blood tests done for new patients. what he found was that the majority of the patients were coming back with one or multiple strains of mycoplasma. i think after a bit the doctor told him to stop. if you look at the strains of mycoplasma they call the main ones gulf war 1, and gulf war 2 on the blood test. they are named this because mycoplasma is what is a main factor in gulf war illness, which is very very very similar to lyme. once everyone actually gets themselves tested and realizes that these certain mycoplasma species only have one history that you will ever find, and thats bio warfare.
the good thing is that there have been so many posts and that this issue is coming out into the open. i remember not so long a go, maybe a year or two when the mods and other people would not even want this topic in anything other than off topic. i think they even knew the truth but said that it was too much for some to deal with.
there is a change happening, more and more people are talking about this. and more and more are waking up to the truth or at least part of the truth. we all know the insanity that exists with doctors and lyme. we can all see something is not right in this area. the symptoms are all over this forum in the form of stories, post the craziest thing a doctor has told you, polls, ect. actually the reason i woke up is because of a public lyme hearing. the public health director was acting so ridiculously to try to fault a lyme doctor on his research and presentation. the doctor had a long list of names of other doctors who had published information on the same topic. the public official was trying to make it seem like the names were repeated on the list and that the list was actually very small, when in fact it was the opposite. the persistance of this guy was what really got me going. he kept going and going until he looked like a complete idiot. he made the guy just keep reading many many names of the list instead of letting him go on with the research. well this got me going. my own mother had learned from a lyme support group about plub island. they all agreed that it was a cover up. months went by where i could not believe it. until i saw this hearing and finally the whole thing was just far too warped. something was wrong, and i had to at least research this island which i knew nothing about, but had previously formed an opinion on.
everyone should know that mycoplasma is a co factor in aids with the visna virus. and the goverment has patented it. the patent is even availible on a .gov goverment website: http://patft.uspto.gov/netacgi/nph-Parser?Sect1=PTO1&Sect2=HITOFF&d=PALL&p=1&u=/ netahtml/srchnum.htm&r=1&f=G&l=50&s1=5,242,820.WKU.&OS=PN/5,242,820&RS=PN/5,242,820 the patent mentions chronic fatigue.
i have 5 strains of the mycoplasma. one reason its important to learn what mycoplamsa you have is because only certain antibiotics will work. in addition you can take supplements like selenium which block the mycoplasma growth. also when you begin to understand how they work and operate you can do more to make yourself healthy and resistant to them.
the more you know the more you can do to help yourself and those around you.
Posts: 245 | From connecticut, the lyme state | Registered: May 2004
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First off, GreatCod---a few months' back, over on sci.med on good ole' google--you posted one of the damm funniest respites to Brent and his side-kick( having a memory lapse here with regards to the other guys moniker--the expert in cut and paste cyber-medicine)
You know, the good cop, bad cop dynamic duo
I believe you awarded them the Nobel Peace prize in cyber-medicine
Well, it was darn hilarious
You missed your calling, should have been a NY Times columnist.
Well done, I say!!!
Anyway......
Several yrs ago, I moved to a southern state in which lyme was just recently recconized( I've since moved twice)
After one of my first support group meetings, when discussing the reality of this( bio-warfare) possiability in a private phone conversation with one of the supposed leaders--she told me flat out that this was "Northern Propaganda" and she never wanted to talk about it again.
I had to wonder "Who made you Queen"?
Well, several yrs later---and no, we no longer have any contact--I found out though other group members that she told the local LLMD that I had told the group at large about this ( No-Way) and that I had scared the death out of the poor souls in the group.
Kindly, the co-leader told the LLMD that I had done nothing of the kind--that I wasn't even at this supposed meeting--since I was in Hawaii!!
I now have contact with this doc due to a study he is involved in, and I decided to approarch the subject matter in a recent conversation
With regards to the leaders "tale", that was wrote off as mis-memory( by the doctor) on that leaders part--due to advanced white matter involvement with said patient at the time of the supposed false comment---so it was interesting to note that the doctor recconized that though this may be the leaders reality---it most likely may not reflect true reality ( in essence--her reality was that I was at the meeting and stated those facts--not that we had a private conversation about the subject matter) Really, with brain fogg and cognitive problems, let alone white matter involvement---you can see how easily this could happen.
So, I would be careful as to who I would discuss this with, even casually
We all are aware of this here( and in most other E-lyme groups) but there can always be the one person who doesn't believe it, or refuses to believe it---and can case some trouble with regards to this topic matter.
posted
its 5 species, you are right, that would be the proper term. i have gulf war 1 & 2 which i believe is fermentans, and incognitus. i think also penetrans, pnmonaie, and genatailium. it has been a long time since i have been over the species names so its not very clear in my mind.
what antibiotics have you had sucess with? i have been on doxy and then mincocycline forever and am seeing only a very small improvement. today i am seriously bummed out because i feel i am not doing enough to go after these super bugs.
please let me know what you have taken for the mycos.
also if anyone has information on antibiotics specific to mycoplasma species please please post that information. i really need somewhere to go to get better after all these years of illness.
of even more interest to me is seriously strong natural antibiotics which are non toxic. i am on organic wild oregano oil, olive leaf, lots of raw chlorophyll, samento, and some hydrogen peroxide.
[This message has been edited by break the chains (edited 14 April 2005).]
Posts: 245 | From connecticut, the lyme state | Registered: May 2004
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
my daughter had fermentens and dr. jones treated her with septra ds and rifampin for 2 months...he said that always kicks it ..she's been great now for months..no problesm..
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
so ive thought about it and im pretty sure i have: mycoplasma fermentans, mycoplasma penetrans, mycoplasma pneumoniae, mycoplasma genitalium, and mycoplasma hominis. fermentans is the one that is incognetius (means hidden, govt named)
i also have lyme, babesiosis, bartonella and others.
its a pathogen party
Posts: 245 | From connecticut, the lyme state | Registered: May 2004
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
break,
You must be pretty sick.
My understanding is that incognitus is just one strain of the fermentans species and not all M. fermentans infections are with the incognitus strain.
I've done lots of digging into abx. Florquinlones are the way to go in most cases. Not one abx works on all species though. I posted a list a few months back, but the search fucntion is not working. I'll try to find my original info and repost it.
I've done 7 different abx and/or combos over the past 9 months. I've improved greatly but still have a way to go.
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hey there everyone and especially firsttwin,
I have Mycoplasma too but am not sure if I'm being treated for it. Just did a round of Cipro 1000 mg, Biaxin XL 1000 mg, and Flagyl 1000 mg. Flagyl just for a week the others all three weeks.
My question is how long to be treated for Mycoplasma concurrently and with what? Looks like the Cipro, Biaxin and Flagyl would cover it but for how long?? What do you all think??
I'm on orals 5 days a week with weekends off. Take for either 3 or 4 weeks with a week off. Will that cover the Mycoplasma too??
Am on other orals on diffrent months, like Septra and Augmentin or Doxy etc.
Also is the Mycoplasma what causes hypercoagulation?? I had a test at the Mayo that said I had abnormally large red blood cells but they never explained anything to me.
If yes, will the orals cure the hypercoagulation as it kills off the Myco??
Am curious cause I thought Lyme was the culprit and thickened the fibrinogen level.
Gosh, that's enough questions, isn't it??
Posts: 6221 | From Columbus, GA | Registered: Jul 2004
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
I read the mag article. Interesting.....wondering
Where/how is the testing done?
Can anyone in this thread address symptoms or is it just overlapping with all the lyme co-infection symptoms????
Another question: Does Dr. J. down south test/deal with this???
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I am wondering how I can convince a judge that the reason several of us came down sick at the same time and were all eventually dx with CFS/fibro that it is due to mycoplasma's.
If this is true. How did we all get infected at work?
I did have one doctor tell me that mycoplasma's was the reason for several employees coming down sick at work.
But, I had a falling out with this doc early in the game of trying to find answers.
I also finally was tested for mycoplasma's and it was positive.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
UP
Posts: 6221 | From Columbus, GA | Registered: Jul 2004
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posted
My son and I both had Mycoplasma fermentans come up on PCR. (note, one year into LD tx) The LL's familiar with it said it could have either been tick-bourne, or opportunistic.
Doesn't mean we don't have other strains.. Minocycline helped, and in both out cases the circulating immune complexes shot down to normal after being chronically high.
So..I wonder if Mycoplasma contributes to those immune complexes (C1Q)
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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