JUST HEARD ABOUT THE NEW HBO DOCUMENTARY BEING MADE ABOUT LYMES DISEASE. YOU CAN GO TO WWW.OPENEYEPICTURES.COM AND CLICK ON "UNDER OUR SKIN" TO VIEW EXCERPTS ABOUT THE SHOW. SOMEONE TOLD ME IT WILL AIR IN OCTOBER, BUT I WAS UNABLE TO FIND AIRING INFORMATION ON THE SITE. LOOKS LIKE THE FILMMAKERS WILL BE AT THE RESTON, VA TIME TO HEAL CONFERENCE.
FINALLY SOME PRESS!!!
LYMEDESIGN
Posts: 263 | From Georgia | Registered: Feb 2006
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posted
Is this for sure going to be on HBO?
Posts: 8430 | From Not available | Registered: Oct 2000
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I've seen a 20 minute clip of the program at a recent conference and I can only say that the film is amazing. I can't wait until it comes out and can be shared the the public.
If you feel that this project is important, please consider supporting it financially....
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I just talked with Andy Abrahams Wilson, the producer/director of the film this afternoon.
For purposes of accurate information, the information contained above regarding timeframe and mechanism of distribution are *not* accurate.
The film is underway and is critical to all of us with Lyme. I encourage all of you, per my previous post, to contribute financially to the project if you are able. It is so important.
Further information about the film will be available as the project progresses.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
IT'S LYME DISEASE NOT LYMES. I KNOW IT'S A LITTLE THING---BUT WE KNOW WHAT WE'RE TALKING ABOUT HERE. WE SHOULD SAY LYME. AND SHOW WE'RE EDUCATED ABOUT THE DISEASE. WHEN I HEAR A DOC OR NURSE SAY LYMES I JUST WANT TO PUNCH THEM.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Yeah, it's funny. It didn't used to bother me seeing "lymes". Now, it drives me nuts.
Posts: 856 | From Texas | Registered: Jan 2005
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WildCondor
Unregistered
posted
Why is it I just want to jump up and scream when somebody says Lymes disease? Makes us so crazy mad! I think its because we fight so hard for a diagnosis, and the political mess it is, and all the lies in the media and from the ducks, its like we want justice! Spelling it Lime annoys me just as much! Grrr!!!
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Hey, at least they didn't call it Chronic fatigue or fibromyalgia....
Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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BOY, AM I ASHAMED FOR FOR "TYPING AND NAMING" THE INCORRECT NAME FOR LYME DISEASE. SORRY TO HAVE CAUSED ANY UNDO AGGRAVATION TO ANYONE. MY MISTAKE.
I WAS SO EXCITED TO HEAR FROM SOMEONE ABOUT THIS PROJECT. I GUESS I SHOULDN'T HAVE LISTENED AND TRUSTED SO NAIVELY. I JUST WANTED TO BELIVE WHAT I HEARD SO BADLY.
SO AGAIN SORRY TO ALL FOR THE INFORMATION I GOT WRONG. I WILL ENCOURAGE ALL TO DONATE TO THIS PROJECT!!! IT LOOKS WONDERFUL!!
LYMEDESIGN
Posts: 263 | From Georgia | Registered: Feb 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I hear ya about "lymes disease"
Sound like lemons & limes.
There was an episode on the sitcome "Seinfeld"
In which the Elaine was telling Jerry that her friend had lyme.
Jerry said " I thought she had epstein Bar?"
Elaine said " NO I think she has epstein Bar with a twist of Lyme"
Alot of laughing in the audience. They thought this was funny.
Gerrrrrr
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
Dana,
That was on the other day and my husband turned to me and said, "That's just not funny, is it?"
I also have Lyme with Ebstein-Barr--but i guess there is no bad publicity--at least it gets the name and the idea it is a bad disease out into the public consciencness.
L
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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How many of you have Lyme Disease with Epstein Barr Virus??
Just last Dec. my doc finally diagnosed me with Lyme upon my "false negative" lab tests. He had me see an infectious disease specialist for further evaluation and the ID doc told my PCP that I don't have Lyme Disease but that I have Chronic Mono.
I don't believe this ID doc which I think is a quackoo duck, but I do believe in the possibility of having EBV that was probably exacerbated by having Lyme Disease. My doc first diagnosed me with EBV when I crashed about 3 years ago, before he eventually told me I have Lyme Disease....
So I'd like to hear more about this and what your docs are doing about this type of situation. Is EBV considered a co-infection or what??
Posts: 90 | From Maryland | Registered: Jan 2006
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Don't sweat it, Lymedesign. We're just cranky. Lyme disease makes us this way.
Besides that, I have a spelling obsession. What do I do for fun? Play tournament Scrabble.
So be sure to throw it in my face the next time I misspell or typo....
Regards, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Oh yeah, Shaz! Who you callin' cranky?!?!?!
Seriously folks, this documentary group has a big catalog of films they have done and many have been shown at film festivals all over the world, and on such as PBS. You can check them out on their website.
I hope they will do a good job. If anyone gets to talk to them at the "Hope to Heal" conference, please mention the accuracy of LYME.
Several years ago, there was a move to call it Borreliosis or Lyme Borreliosis and that is what it is called today in Europe in many places.
I always thought that made more sense, though now, I would really like to address "Tick-borne disease" as that includes many co-infections and other diseases carried by ticks.
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
lyme design-please don't feel bad at all about that---it gave us
#1-a chance to educate a whole bunch of people and #2-a chance to V-E-N-T!!!!!!!
really-i wanted to say it and i really did not want to hurt anyones feelings...there's a lot of other stuff going on too...stories about good llmds that are not true and unfortunatly---docs saying they are llmd when they are not...bad stuff happeneing and a whole bunch of newbies around lately...
so PLEASE do not take it personally and thank you for giving us the chance to talk about it
my story about an ortho doc calling it lymes is so crazy i can't even write it and may be why it bugs me so much!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Absolutely, Ann, I've been following the making of this film from the beginning. Since I always like to check my sources before joining or endorsing anything, I went to their website, and noticed that they had done work for a well-known modern dance pioneer. (I was a pro modern dancer.)
I emailed her, and she assured me that this group was both professional and compassionate. They did a wonderful job with a documentary on AIDS, really helped raise understanding about that disease.
The current film was undertaken because a member of the company has Lyme. We need to really get behind this film -- a picture will be worth a thousand words in the general population.
Regards, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
What an exciting project!
We still love you LYMEDESIGN! it's just with how hard we struggle for recognition that we need to get the name right.
I actually prefer TBI- tick borne infections to include ALL the cos most of us struggle with. Many uninformed do not realize that there are 7+ infections that we might have.
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