posted
Hi! So ok here's my story....I tested positive for lyme disease in the fall of 07. It was a fluke test the nurse practioner did because I went in with neck pain and no injuries. They started me on a cycle of doxy for 4 weeks. Then nothing really happened. I felt ok. Then all of sudden about a month ago, I couldn't move! My entire body hurt!! It was really scary. I went back to the doctor anfd they put me on doxy again for two weeks. Then I got a little better. They also referred me to a arthritis specialist? He said my lyme tiders had gone down??? No idea what that means. He also said I had a vitamin D deficiancy?? It still doesn't explain why I couldn't move for almost a week! Now my family doesn't believe I have lyme. They don't understand the constant pain I am in and none of my docs seem to know what they are talking about. I have no idea how long I have had this disease. I have worked bathing and training dogs for 5 years. I could have gotten it at any time. I dont specifically remember the bulls eye, but it could have just been in an unusal spot. So anyway, that is my story so far...I posted a topic hoping to get some referralss to a doc that know what he/she's doing! Thanks for reading me!
Posts: 9 | From MA | Registered: Jul 2008
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Hi newbie,
Just breaking up your paragraph so it's easier for some of we neuro lymies to read (vision problems). You'll get more responses that way! Welcome!
Hi! So ok here's my story....I tested positive for lyme disease in the fall of 07. It was a fluke test the nurse practioner did because I went in with neck pain and no injuries.
They started me on a cycle of doxy for 4 weeks. Then nothing really happened. I felt ok. Then all of sudden about a month ago, I couldn't move! My entire body hurt!! It was really scary.
I went back to the doctor and they put me on doxy again for two weeks. Then I got a little better. They also referred me to a arthritis specialist?
He said my lyme titers had gone down??? No idea what that means. He also said I had a vitamin D deficiancy??
It still doesn't explain why I couldn't move for almost a week! Now my family doesn't believe I have lyme. They don't understand the constant pain I am in and none of my docs seem to know what they are talking about.
I have no idea how long I have had this disease. I have worked bathing and training dogs for 5 years. I could have gotten it at any time. I dont specifically remember the bulls eye, but it could have just been in an unusal spot.
So anyway, that is my story so far...I posted a topic hoping to get some referralss to a doc that know what he/she's doing!
Secondly, you DEFINITELY need togo to a Lyme Literate Medical Doctor (LLMD) so it's good that you posted seeking doctor question.
The doxy probably didn't kill all of the Lyme AND you may have some coinfections from that same tick.
Coinfections needed to be treated with different antibiotics. If you do a search for Bartonella, Babesia, Ehrlichia and mycoplasma you'll see that more testing is necessary.
Don't panic! You're on the right path and a LOT sooner than most of us were and have still gotten better.
Check out those links yourself because they will help to educate you, too.
Hang in there and I'm sure more people will be responding soon.
posted
Thanks!! I appreciate the help!!
Posts: 9 | From MA | Registered: Jul 2008
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bettyg
Unregistered
posted
k9,
welcome; glad you found us!
clarissa gave you excellent advise above!!
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
posted
Hi! I'm new here too. My daughter was diagnosed with chronic lyme in September of 2005. She was being treated by Dr. Donta out of Boston up until Dec of 2007 when he just seemed to get too busy and sort of dropped her. Before he dropped her, he had taken her off all meds and was planning on starting her on a new cycle and just never answered any of my posts or calls. We put her on teasel root tincture and it really helped her alot. Recently however, she's been really syptomatic and she feels like she's worse than she ever was. I got her an appointment with Dr. Jones but it's not until the 20th of December and I still have to find out how to pay for it since my insurance will not pay for it. She's 16 and still trying to have a life in spite of this disease. So, that's my story. I "m just glad to have a place to go where so many other people are going through the same thing. It's really nice to know we're not alone. Posts: 1 | From Springvale, Maine | Registered: Aug 2008
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posted
tinker , just so u no your not to post doctors names . plz edit your post . click on pencil to edit . tkx ,Doc
Posts: 95 | From nys | Registered: Jan 2008
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Welcome to K9trnr and Tinkerbelle!
Glad you found us here at Lymenet!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6238 | From Columbus, GA | Registered: Jul 2004
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