LymeNet Flash: My bizarre story

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»	LymeNet Flash » Questions and Discussion » General Support » My bizarre story

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Author

Topic: My bizarre story

momofthree
LymeNet Contributor
Member # 19490

posted

Hello Bettyg, I am a 50 year old lyme patient.
I recently found out that 2 of my three

kids, 20 and 19, have lyme and the third, 17, is being retested this week as he only had the

41+++ band showing. I started going to Dr. M from Fond du Lac. I was going to go to

Dr. W in Baraboo, WI, but Dr M felt my case was too severe for the new doctor as my

neurological problems were so advanced and he said he would see me instead. He is full so I

see the PA G. I have been receiving oral antibiotics and suppliments since 7/17/09 and

and my daughter started oral antibiotics and suppliments 9/1/09. The boys were scheduled to

see PA G 10/15/09 when I was going in for my third doctor visit. After my second visit to

the doc. they added some new suppliments. Two weeks later I got terrible diarriah. I waited

for two weeks to see if it would ease up but it only got worse so I called the office 9/24/09.

They told me to stop all suppliments and antibiotics and go on a clear liquid diet for 24

hours then start eating cream of wheat. I questioned them as they had me on a no wheat,

sugar, dairy, additive diet and wondered if I should do the BRAT diet till things firmed up.

They said no. I did as they said but things did not improve so I started with the rice cakes,

bananas, homemade applesauce with no sugar, and ezichial toast no butter. Things firmed up some

but I was having bad stomache cramps. I called the office monday morning, 9/28/09 and

explained I was still experiencing complications and they told me to get a blood test and stool

sample to see if I was dehydrated or had an new infection. I told the office manager I wanted a

second opinion from Dr. M. She told me to start the BRAT diet and I said I already had. I

have not met with Dr M in person so he could not give me a phone consult and he was out sick but

they would try to get me in to see him asap. I did the testing and had the results sent to

them. I asked what I should do about my antibiotics and they said to wait.

My daughter's second visit was 9/29/09 and I went with her as did her boyfriend and my

girlfriend. While we were there we discovered there had been a miscommunication about her

blood work. We had asked the doctors office to do the testing and they thought we were getting

the testing done ourselves. We also discovered that the doctors office forgot to order a

coinfection test and they were concerned it was too late as she had already started antibiotic

treatment. We asked about the flu and H1N1
shots as she is in college and we were told she

should just up her level of vitamin D, wash her hands and eat good food. I told them she was

not on any vitamin D. They added 5 new suppliments to her list and said they would

follow up with her during her next visit. After all this I asked again about starting up my

antibiotics as I was concerned it was getting to be a long time off of them and I know that is

not always a good idea. They said I should wait for my stool test results. I called the office

this morning because I was notified by the lab that the test results were in for the stool

sample. It was then that I found out that they had sent a letter out to me and they would not

talk to me on the phone. I asked again about my antibiotics and they put the office manager on.

She informed me that Dr. M decided to drop me as a patient because I upset PA G and the

nurse. She admitted that I had not been loud or swearing but that my questioning my daughter's

blood worked seemed like I was being acusitory and they decided that was unacceptable. I was

floored. I asked what I was suppose to do about my treatment and she said that the office

doesn't have me on any antibiotics right now so I am not officially being treated so they can

drop me as a patient. I explained I was only taken off the antibiotics because of the

diarriah and was waiting for the test results. She repeated that they will not see me and that

they are not administering antibiotics right now. They sent a certified letter that also

announced the office would not see my boys. I called and asked about my daughter and because

she is 19 and under antibiotic treatment that they would continue to see her. They can't drop

her in the middle of treatment. The office manager is sorry it turned out this way but they

have to be careful of litigation. I told her that it could take months for me to get into a

new doctor and I had no intentions of getting anyone into trouble. I told her I was sorry for

questioning anyone about the blood tests but she said it is out of her hands.

I guess I am writing to you because you seem to be like a head person on this site. I do not

want anyone else to start treatment and then get dropped midstream because questions are asked.

I know Dr. M is an excellent doctor. I also know that the PA, G is very new and is

just learning the ropes. She will get into the swing of things as time goes on, but until then

other people may run into this same problem. This has put my health at risk. Starting

antibiotics and then being abruptly removed from them is exactly what causes long term and life

threatening complications especially someone like me with severe symptoms.

Do you have any advice?

Thank you,

J C

PS I have decided on a path for the research I want to start. I want to focus on all the kids

with psychological problems like my two older children who were never tested for Lyme before

being put on ADHD and Anxiety meds.

Posts: 303 | From green bay, wi | Registered: Mar 2009 | IP: Logged |

JamesNYC
LymeNet Contributor
Member # 15793

posted

Wow,

I'm sorry to hear of such treatment by a LLMD's office. I would think they would have a more professional attitude and understanding when dealing with ill people.

Your story should be added to the comments for Dr. M in our Seeking a DR forum.

James

Posts: 872 | From New York City | Registered: Jun 2008 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Sheesh. If you need more drs' names, let me know.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001 | IP: Logged |

momofthree
LymeNet Contributor
Member # 19490

posted

JamesNYC I don't know how to post to that forum. Going to see Dr. C in Mt Kisco next week

Posts: 303 | From green bay, wi | Registered: Mar 2009 | IP: Logged |

bettyg
Unregistered

posted

mom, glad you posted here after we talked privately. [Smile]

IP: Logged |

lou
Frequent Contributor (5K+ posts)
Member # 81

posted

Lymies have so many problems, many serious because they were not diagnosed at an early stage. This is really hard to cope with, both for the patient and the doctors. The doctors have no backup from specialists, no help from research, and are in fear of losing their licenses for treating us.

So it is understandable that they might lose heart, want to dump people. This has happened to me. And the dumping was not always handled well, very seldom was, in fact.

Patients have to have a lot of self reliance, and find support elsewhere from lymenet, support groups, etc, so the whole load is not dumped on an already-overwhelmed doctor.

Not passing any judgment on what happened to you. Hope you get the help you need.

Posts: 8430 | From Not available | Registered: Oct 2000 | IP: Logged |

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