posted
I wanted to write and ask for your prayers. The next three days are important days for me, and at this time, although I am wanting to keep the faith and be of good courage, I have been battling fear.
Last week a CT Scan found a growth at the base of my brain. I meet with a specialist on Thursday to determine if it is something to be concerned about and if surgery is required.
Wednesday I have an ultrasound on my left breast due to a hard lump.
All of this comes when seeking healing for Lyme and co-infections. I have not been able able to work or drive for 9 months. To have another illness of top of what is happening now, I will feel so broken, and dont even know how a person could handle it.
I am trying to take one day at a time. I would greatly value your thoughts and prayers over the next couple days. I am trying to walk by faith and be of courage, but sometimes it is hard and I feel like breaking down and crying.
With heartfelt thanks,
Morningsong
[ 12-17-2009, 05:25 PM: Message edited by: MorningSong ]
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I am sorry for all of what your dealing with.
Sending all my prayers and thoughts to you.
I hope that things turn for you in the best possible manner.
Blessings..
And Big Hug to you too...
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Morningsong,
So sorry you have to deal with this. To rule in or out another possibility, please go to u tube and type in brain worm.
There was a woman in the news about 6-8 mos ago and the doctor found a worm in her brain instead of the tumor he thought he saw on the scan.
Don't mean to scare you, but just to make you aware. Parasites and worms play a MAJOR part in Lyme disease,
Sending prayers and healing thoughts,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Will keep you in my prayers.
Praying that all will turn out okay.
Hugs to you, Jane
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Prayers and Angels headed your way.
Please keep us informed.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
You are in my prayers!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
It's ok to cry. Crying makes you human. Many of us have had some crazy things come up on scans and many times it turns out to be something only lyme doctors would recognize. Many times these lesions seem to go away with Lyme treatment. I will pray yours do to and prove to be nothing harmful. I know you will find that you are much stronger than you can imagine and that you are not alone in your struggle. I'm here for whatevery I can do and I will say a prayer for you. Blessings, Trish [email protected] www.S-L-A-M.orgPosts: 142 | From Sturbridge, MA | Registered: Jul 2006
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
That's alot to deal with.
I am praying for you...that you have the strength to make it through each day, that you will get good news, and that you will find healing.
Blessings to you.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Thank you everyone for your thoughts, prayers, and support. I thank God for giving me the strength to make through.
Update:
A mammagram and ultrasound was done on left breast. The doctor stated that it is Fibroadenoma, which is a non-cancerous growth.
Today saw a Neuro-oncologist who stated that the spot on the brain is non-cancerous and is a colloid cyst. Because of the location surgery is not recommended, but if it increases in size surgery would be required. The doctor stated that this would not be causing the pain in my head.
Today I returned from the doctor and received a call from the Health Dept. They stated that in June 2009 I tested IGM positive for Legionella Pneumophila. I never knew this test was even performed by my former LLMD, and this was informative news. Will call former LLMD to get copies of these labs. Hopefully they will send to me.
I am thankful for the good news that this is not cancer. Am still researching my next step as my head is in a lot of pain each day, and my ILADS LLMD does not do IVs. Am considering looking for Lyme Literate Neurologist -- Im not sure what else to do. I just need help with the intense head pain.
Thank you again for being there and all your thoughts and prayers. It has meant a lot. Posts: 515 | From In His Loving Care | Registered: Apr 2009
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Yes, tested borderline positive for IGG Babesia duncani. Never any night sweats, etc. Thats is great that you are free of the migraines.
Yes, as far as I can tell the Legionella is the same as Legionaire's disease, but I am not totally sure. Not sure if it is a tick borne or water borne illness.
Thank you very much for all your prayers, PMs, etc.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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posted
I am interested in this. I was dxd with a benign colloid cyst back in 2000, the same year i was bitten by a spider - not a tick. Ive had regular MRIs for years - no changes. The neuro thought my cyst could have been caused by exposure to malaria or "another infectious disease". No-one mentioned lyme.
Posts: 42 | From new york | Registered: Dec 2008
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
MorningSong, I'm relieved to hear that everything went well.
Did the doctor give you any recommendations, suggest any further tests or treatments for your head pain and vision problems?
And I can't believe that your former LLMD's office never called to notify you of your positive test results. I was curious so I looked up Legionella Pneumophilia. You get it from breathing in contaminated mist or water vapor. Usually treated with Zithromax or a quinolone like Levaquin. Have you been on one of these antibiotics for Lyme?
I will certainly keep you in my prayers. Hopefully you will be able to find a Lyme literate neurologist to manage your care. Or at least an open minded neurologist willing to work with your LLMD.
Hang in there MorningSong. Big Hug Posts: 5237 | From here | Registered: Nov 2007
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