-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I love Stevie. Huge Fleetwood Mac fan and I did go to concert in late 70s and I will never forget her on stage in her wispy black flowing dress.
Neuro sx, things that make you go hhhhuuuuummmmmmmmmmm????????
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
I had a horrible reaction to klonopin too. I totally agree with her -- taking this drug was one of my biggest mistakes. Although it helped my neuro. symptoms, it sucked the life right out of me and caused tons of new neuro. problems and severe pain. the withdrawal symptoms can last for years. I cringe when I hear of other people who take it b/c I know what hell it was coming off it. It's not like that for everyone though. I think it affects people in different ways.
Posts: 618 | From NC | Registered: Oct 2009
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posted
I took it for about 4 days and felt like H***. I could hardly get out of bed. Glad I told the dr "no way." They gave it to me when I had an episode with my heart during babesia treatment.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by jwall: I had a horrible reaction to klonopin too. I totally agree with her -- taking this drug was one of my biggest mistakes. Although it helped my neuro. symptoms, it sucked the life right out of me and caused tons of new neuro. problems and severe pain. the withdrawal symptoms can last for years. I cringe when I hear of other people who take it b/c I know what hell it was coming off it. It's not like that for everyone though. I think it affects people in different ways.
Darn near killed me.
Lymetoo, it sucked the living life out of me, as well. I was slammed hard with depression from them.
I've been a little vocal about it when the subject arises, not to scare people, but it would break my heart to see someone unknowingly get hurt by them like I did.
Posts: 1142 | From South | Registered: Dec 2010
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by Hambone:
quote:Originally posted by jwall: I had a horrible reaction to klonopin too. I totally agree with her -- taking this drug was one of my biggest mistakes. Although it helped my neuro. symptoms, it sucked the life right out of me and caused tons of new neuro. problems and severe pain. the withdrawal symptoms can last for years. I cringe when I hear of other people who take it b/c I know what hell it was coming off it. It's not like that for everyone though. I think it affects people in different ways.
Darn near killed me.
It sucked the living life out of me, as well. I was slammed hard with depression from them.
I've been a little vocal about it when the subject arises, not to scare people, but it would break my heart to see someone unknowingly get hurt by them like I did.
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Eva Sapi had a nasty withdrawal from benzos, too. It took her a long time to recover from that. She actually runs a benzo withdrawal support group.
Posts: 1142 | From South | Registered: Dec 2010
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I saw her in concert too. Loved it! I read some where that she has CFS. But I always questioned if it was tick born disease. Wondered if she had ever explored that direction.
The the flip side is that Klonopin improves the quality of life for many. It is like that with any medication. We never know how we will react.
My mantra is start low, go slow.
Best, Karen
Posts: 1705 | From Maine | Registered: Jun 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I didn't know anything about this drug Klonopin??? One man's poison is another man's healer.
Just never know how your body will react to something. I can remember when every med, every vit or supp, everything made me have a healing crisis or what we call a herx.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
This is scary. I have been on klonopin for six years. Can't sleep without it. When I stop taking it, after about 48 hours I get heart palpatations.
Once I even got chest pain. Anyone know the best method to get off this stuff. I think I will have to find another way to sleep at night.
I am already cutting back to 1mg a day without adverse effects, used to take 2mg, and taking benadryl to help get over the hump.
I didn't know when the md prescribed it, he was turning me into an addict.
I like Stevie too, grew up with Fleetwood Mac. She has always been so open and honest about her drug problems, willing to share in order to help others.
Last time I saw her, she looked like she was about 30 years old. I know she has to be older than I am and I'm 52!
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
Did you see her in person, or was that an airbrushed photo??
Hope you can get off of it. I would say it would have to be VERY VERY slowly. Speak to your doctor if you want to get off of it.
Ambien is not addictive, in my experience.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I saw her being interviewed about her drug problem. This was about five years ago.
I am afraid of ambien. My son had sleep problems and they gave it to him. He got double vision and we had to take him to the ER.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Linky-
look up klonopin water titration....the best way to ease off of klonopin.
i am at .50 mg/day for many years. i don't have any other choice as hard core abx. have done little for me. klono is neuro protective.
It helps all of my semi-seziure activity and if i didn't have it, i would have jumped off of a bridge long ago.
so, for me, it has been a lifesaver. Dr. Cheney (CFS doctor) uses klonopin to protect the brains of his patients dosing 3 x daily...and his reports is that it helps way more than harms those whose brains are not functioning properly.
as always, Risk/benefit....
Posts: 3975 | From usa | Registered: Aug 2007
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map1131
Frequent Contributor (5K+ posts)
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posted
linky, weaning is the best way off. Can you get a lower dose or cut pill in half?
I too was able very easily to get off Ambien. Weaned myself down and switched to Zolpidem. I'm about to lower my dose on it and see how the restful sleep goes.
I was so scared to go off Ambien after reading some not so good stories of others on this site. Once again we all are so different.
Insomnia is still a huge issue for me. I tried all the natural stuff and never found anything that worked for me. Someday I will.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
I started taking Klonopin in 2008 for seizures because my llmd thought it would help me. After starting it I kept feeling worse and worse. It got to the point where I was having seizures 10 to 20 seizures a day.
I told all of my doctor's I thought that Klonopin was the cause of my problems but they all disagreed and told me to keep taking it. In October of 2010, I finally had enough after taking it for two and a half years. I weaned myself from taking it 5 times a day to nothing.
I never experienced any symptoms from stopping except happiness for finally stopping something I despised. I now feel great and was seizure free for 2 months. I had a small seizure while flying to see my llmd, the low oxygen really gets to me! For me that stuff was the devil but I know it can also help people.
If I would've known what I do now I never would of stopped taking it on my own because it can be so dangerous. Thanks for posting the article I really appreciate it!
Take care and God bless,
Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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map1131
Frequent Contributor (5K+ posts)
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posted
Tutu, that's exactly why I have you as a friend. You tell me things I should have already figured out.
I asked for another sleep med and my doc rx'ed this. Now, I thought my doc knew somethings?
I going to teach him next week "Doc, my friend Tutu told me you're still rxing me Ambien? You really should meet her, she gives life lessons lyme & co. Sharp, sharp ladyfriend, she is."
TBTG, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I have taken ambien , well the generic for years. If i dont take it i dont sleep. I tried to come off when i got preg, but that was a no go. I dont think i am an addict, but i am dependant on it. I do take ativan, always could stop benzos cold turkey. Actually i found coming off opiates (slowly) easier than trying to to come of ambien. I mean i didnt have withdrawls, i just couldnt sleep and i would cave and take it.
Posts: 3905 | From USA | Registered: May 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i've been following this thread cuz the night b4 it was posted i was at a group where another person with sx very similar to mine was talking about how great klonopin was
i was sure it was the answer to my prayers...ha...good thing this was posted
now i just don't know.
the person it helped -like me-had some brain damage. she also has many lyme sx but has never been dx. she said her doc (who she loves now)is going to "run a lyme test just to rule it out"
sigh. i jusst can't get involved in educating ppl all the time anymore.
but i am very glad this thread is here
ps-just in case it helps others. i figured out years ago vistaril is really helpful for my insomnia. i don't have to keep taking more. i fall asleep and stay asleep and dream. i am not groggy in morning. it is basically an antihistamine i think and has anti anx properties. all i kknow is 25-50 mg has really helped me when i had bad reactions to many other sleep drugs
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Pam,
I have tried to wean, but have found that I have heart pain, palpitations etc. Plus, severe anxiety.
Some titrate very slowly. Many say it is dangerous to try to get off this stuff without help.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Well I certainly didn't know I was weaning off one to go on to it's cousin. But before this thread started I had already decided to cut myself back from 10 mg zolpidem to 5mg and see if I'm still getting rested sleep.
I already have trouble calming myself down to get to sleep. I do not want to go back to hourly wake-ups and wide awake at 5 am.
The harder I try to get myself in bed at or before midnight the harder time I have. Oh my when they change the clocks on me in the spring and fall it's weeks before I can get on track.
I wish they would leave the clock alone.
I promised myself that I would never torture myslef like I did for years before I broke down and told the doc...I have to get GOOD sleep or I will never get better.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Pam.. the reason I knew that is that I take Ambien and my script is the generic form. (zolpidem) So I kinda cheated on "knowing so much!"
I got off Ambien many years back with absolutely NO TROUBLE at all. But later, (like a yr later) I began having trouble sleeping again and went back on it. Now I'm like merrygirl; sleep does not happen without it.
kayak.. yes, vistaril is good to get you to sleep. I used to take it for bladder pain. It helped me sleep.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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