posted
At least 35. Most of those are from early on- last year i finally wised up and stopped trying to get help for most things from any doctor who isn't Lyme Literate
Have been called crazy and told it's all in mty head by most
Been sick since 1998 with RMSF and Lyme since 2002, now 100 lbs, bedbound. i am 33 years old i have never been well in my adult life
I want to send every doctor who turned me away a picture of me now and ask them is it still all in my head?
Posts: 428 | From Midwest | Registered: Dec 2012
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I was told by an evil ER Dr:
"At some point, when all the tests keep coming back normal, you're just going to have to accept that it's psychosomatic".
I have lost faith in Drs. Yes there are the few who use their brains and think outside of their limited med school education, but they are few and far between.
Too many Drs brush off symptoms. Not only with Lyme, but in general.
linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Over the 19 years it took me to get a dx, I honestly lost count.
I gave up for a number of years until I heard a doctor being interviewed on the radio about 'chronic fatigue'.
Turns out he was an llmd; but obviously couldn't say so on the air.
I went to see him (out of state of course) and finally got a proper diagnosis.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
I sure lost count. Too many years of no diagnosis or the wrong diagnosis.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I counted. It took over 100 doctors for someone to finally test me for Lyme "on a hunch."
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Zero. I had absolutely no idea I had Lyme, Bart, parasites. I got an anti- depressant and Trazadone for sleep after
my last child was born, because I was stressed with anxiety. The memory issues: I secretly thought I was doomed for Alzheimer's. Wrote everything down to cope.
I blamed myself for my ailments and symptoms- that I wasn't 'enough'. Or, I blamed it on the stress of trying to cure my daughter of autism, her challenges,
my former high paced career, etc. etc. Outside stuff, or my failings as a person.
On a whim I had my daughter tested, then read about Lyme, then we knew-and the LLMD knew the first time he met me, I was there for my daughter. He told me I needed testing that day.
But ZERO Dr.s I went to and tried to figure out an illness for myself. And no memory of a tick bite ever.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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I just found the note pad from the first doctor I took my son to when I realized he could have lyme.
She recommended taking highest dose possible of claritin for a month straight -"to cross allergies off the list"
To "Pre dose" Ibuprofin at the highest dose for weight possible, again for a month.
She gave him a abx script for penecillin for a "sinus infection"
Besides all of these suggestions being bad for him she did all of this WITHOUT SEEING HIM!!! She refused to let me bring him in from the waiting room as I had gone in to talk to her alone, as I was upset and didn't want to scare my son.
Just one of many docs that didn't help, and did the exact wrong thing.
Posts: 372 | From british columbia | Registered: Feb 2012
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