Just wondering if anyone from here is going to the Lyme Seminar in Wolfeboro tonight?

Dr.Raxlen of CT and Dr. Cameron of NY are the guest speakers. Both are affiliated with ILADS.

Talking about lyme, co-infections and the need for long term treatment and or re-treatment.

I don't know much about these lyme doctors, but hopefully I can learn something tonight

Hope to see you there.

It starts at 6:00 pm at Brewster Academy...

~LymeBrat
 

I was looking forward to going to the seminar but was not feeling well enough.

I've been passing out flyers to drs. and posting them where ever I could all month.

Please post and let us know how it was.
Swiss
 

Just wanted to check in and say that I was pleasantly surprised by how good the seminar was.

These LLMD's seemed very knowledgeable and I was surprised to see so many doctors in the audience...a very good sign for us lyme patients. ( of course my PCP was nowhere to be found )

They basically went over stuff I already knew, but it was a very good informational seminar for those just learning about lyme.

I would say there was 200- 250 people there and they plan to have a similar seminar next year.

There was also a doctor or lab specialist from Igenex's who was very good at explaining why our blood tests need to be performed at their lab, as they offer a more sensitive and specific test for lyme.

There was alot of talk about how lame the CDC is and how the medical field needs to open up their eyes and minds to the dangers of lyme.

Also talk about the need for long term abx, and the need to re-treat if symptoms persist or reoccur. As well as co-infections, transmission from mother to child, etc.

I think they are offering a VHS of the seminar. If anyone is interested, I'll check into it.

I meet some really great people, and cried with mothers who like me, unknowingly gave their children lyme in utero...

Overall it was a great seminar, and it was really great to be in a room full of people who understood what I have been going through as a lyme victim and the mother of 2 children with lyme.

Also, I think the best news is that my twin sister has been battling trigeminal neuralgia, fibromyalgia and possible MS for about 5 years...

I think she may have lyme. She did agree to be tested twice for lyme, but not at Igenex..so she came back negative. SO she was convinced she didn't have lyme.

Well I dragged her to the seminar and she just sat there shaking her head at all the similarities between her illnesses and lyme, so she is going to see an LLMD in June...Yea!!

~LymeBrat
 

Initially, even though this woman is pretty Lyme-literate because of her friend, I was skeptical that it might be just another seminar propogating (is that the right word?) all the false info about Lyme. She didn't know the speakers--though she did say "I think these are good ones; they're from CT and NY"--but I now see from these posts that it was not one of those meetings that reinforces innacurate info! How wonderful! Though I see Dr. R anyway, I would have enjoyed attending this.

Do they plan to do more of this? Other ILADS members? What an importnat outreach process. It could be tremendously beneficial.

Julie
 

Thanks so much for letting us know how things went at the seminar.

I'm so happy to hear how many people turned out for it, and how wonderful about your sister going to see a LLMD in June.

I will keep her in my prayers.

Hugs,
Swiss