This is my 5th year of treatment. I have gone into remission once which I am very grateful for. But I am seeing the side of lyme I knew was always there,but always knew we would deal with when we got there. Well I am here. Lyme is so envoled that it takes more than antibiotics to climb out of the hole this disease has put us in. And I am at the point as to there I can get the antibiotics and that is it. I can't afford the testing for all of the damage it has done to my body over the years.And I surely can't afford all of over the counter supplements that in all likelyhood I need.
I am starting to think that this is the end of the road,and I can accept that. I just wish the medical world could see what all of the politcs and games have done to us.
John
 

AS I type your name RAID comes to mine. But, on the serious side.....regarding your question what do you do when you can't afford it anymore?

Wait. The way I deal with it is to wait until I can afford it. It does get frustrating, but I try not to focus on it...at least for not too long.

I try to focus on the positive in my life that I have to be thankful for. It out weighs the negative every time.

I am a business affiliate with a supplement company and am hoping that I will be able to eventually afford the supplements I need each month. So far, I haven't really been able to put much time into the company due to health being so low functioning.

But, I still haven't loss hope.

I keep hoping that I will be able to find a way to supplement my income so I can try some of the other things the LLMD has suggested I do also.

So, I guess what I am saying is to not throw the towel in yet.

It sounds like you have really overcome a lot of obstacles so far.
 

amy
 

Thanks for the replies. I get alittle poor poor pitiful me sometimes,and yesterday was one of those days. Ya know things could be alot worse,and I sometimes forget that. Like I could be in a country where there was no meds to treat this at all. Or I could be dealing with a duck for a Doc.
Granted I have had this for a long time( since 1988 we think)and it could very well be too late. Well if that is where I am so be it.
That is way I just want to curl up in a ball when I hear of some one who if they would have been treated early,they could of avoided all of this. Talk to the people you meet tell them not too take no for a answer,take their health in their own hands. How ever you do need to be honest with yourself. It all comes down to the person who is sick,weather or not they will have some good come from their life. Life here on earth is but a breath and it is over. Thanks for making the best of it,with your posts.
as always be as well as you can be
John
 

Lishs Mom
Go right ahead and use what have I have writen.If it helps in a small way then it will not to have been in vain.
John
 

Whether any homeopathic remedy is capable of "curing" LD or not, I'd be hesitant to hazard a guess. However, homeopathy is very, very affordable -- until something else better comes along, which proves itself to be "the ultimate answer" and "standard treatment protocol" for late-stage, chronic, persistent neuro-LD.

First, here's the link to a webpage about Ledum, which is the recommended homeopathic remedy specific for LD.

http://www.cassia.org/ledum.htm

Next, here is the link to a new book review about homeopathy, which was just posted today as a new topic and which reminded me about suggesting the use of homeopathic Ledum to you.

http://flash.lymenet.org/ubb/Forum3/HTML/010124.html

The main point is, never ever give up. Hang on the best way you can, using whatever means are within your budget to cope with this, and have faith that sooner or later the "right protocol" or "ultimate cure", one which will be proven to be both safe and cost-effective, will come along -- so that no one ever has to ask again this same awful question that you have asked.

Right now, there are several of us who are enthusiastic about looking into the Marshall Protocol, using Benicar plus minocycline, at the sarcinfo-dot-com website. If it proves itself to be both safe and cost-effective, then it might represent the new wave of the future and the ultimate answer we are all seeking. However, I'm not recommending it to you right now because it's still unproven.

That's why I wouldn't want to see you wasting your limited monetary resources in order to be one of the first human guinea pigs to rush out and try it. I'm only using it as an example of how there might be something else new and better on the horizon, something which we don't even yet know about at all today, but which will become the new standard, accepted treatment protocol of the future.

In the meantime, homeopathy is just about the cheapest form of treatment (that I'm aware of) which helps to manage symptoms and which might even help you to achieve a comfortable state of remission again. So, click on that first link (above) and see what you think about Ledum, because it's dirt cheap -- relatively speaking, that is --to other popular alternative therapies out there.

BTW, Ledum is available in health food stores at the lower, safer potencies. Usually, though, the medium potencies are more effective than the lowest ones are for treating LD. The highest homeopathic potencies are never available OTC in health food stores, but can only be obtained through a licensed homeopathic practitioner.
 

Thanks again for the posts and good ideas. I will look in to them all.
I have another ? for you all. If I remember right I think Labrat had a problem with hole in his toe bones. I think it was caused by the lyme eating them away. I might have something like it,only in the facial bones. About two months ago I had a mri that should thickening of the maxillary sinus. When I went to my LLMD He told me I should check into that. Well Thursday I had a ct scan,and my ent is thinking I could have deteriation of the facial bones in frount of the maxilarry sinus (cheek area). Has anyone else ran into this ? I am just wondering. What ever happens ,happens. You all take care and have a great day.
John (buggy)( appleseed)
 

Anything, the whole concept has to do with an imbalanced ratio of Vit-D metabolites and the effect of this imbalance on calcium metabolism. OK, here's the link so that you can check this idea out for yourself.

http://sarcinfo.com/phorum/list.php?f=1

Note that they do have a good search engine at that website, so you can enter the terms "bone resorption" and "osteoporosis" into the query box to find exactly what you are looking for there very easily.

BTW, I'm looking up research articles on PubMed right now to try to figure out if chronic, persistent, late-stage LD could perhaps, maybe represent an "atypical" presentation of sarcoidosis..(?) If so, then the link to the SarcInfo website (above) might not be too far-fetched for us Lymies to begin studying, afterall.