LymeNet Flash: Lobby day -- How'd it go? How'd it go?

This is topic Lobby day -- How'd it go? How'd it go? in forum General Support at LymeNet Flash.

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Posted by minoucat (Member # 5175) on :

Been thinking about you guys on and off all day. I know it's too soon to tell, but what did you think, oh heros of the lobby wars?

Posted by Mo (Member # 2863) on :

Hey Silly Goose..

It's tomorrow!!

I trust all lobbyists are asleep by now..where I should be, but I'm too nervous..going over points Ellen gave..though sleep disorder lends itself to late night cramming.

Try to tell ya something tomorrow night..

Posted by minoucat (Member # 5175) on :

OK, so I read your post and I thought, oh, yeah, East Coast time, my today is your tomorrow.

But that's not what you meant....

I decided I WON'T send my thoughts to you, or you'd be liable to end up at Niagra Falls attending a Clean Water rally.

Blessings. And GO TO BED.

And PS, I have a goose. They're not so silly as they are made out to be...they just get a little lost in the tall grass...

[This message has been edited by minoucat (edited 18 May 2004).]

Posted by Mo (Member # 2863) on :

AAAH!! Silly Gooses! How cute!!

I said I'd get back to ya, but I'm bone tired..and I know Ellen'd report will be more enlightening..

It was quite a day, though..I was there last year, and had a similar feeling this time, as you hike up the hill to the Capitol Buildings..you think of all the other lyme patients taking the hike that day.

Even though some are functioning better than others..most of us live a modified (or restricted) lifestyle, and the trip is quite a treck.

I know I wouldn't do it for much other than something like this. My two year and thrirteen year old patients/lobbyists were along as well.

And seeing everyone there..even though all in passing as we gathered in groups to address each Senator with the very well laid plans of the leaders of this grassroots movement..(they gave us packets and outlines with very effective and well rounded points and supportive information that was very well prepared in advocating for these two Bills)

Even though we were all together in passing, I was very moved by the fact that we were all there...together..rapping with the Senate.

And sweet Regina, who has been having a particularly rough time lately, made the long trip up from NYC. If you saw what she wrote on the "Lobby Day..Not What I Want.." thread..that's something we all need to read and keep with us...I was really happy to meet her.

The lawmakers writing and supporting the Bills were there ..as well as Ellen and all the other NYers heading up this fight.

Anyway..that's my sappy view..I'm sure there will be an update that's got more prudent information on the overall outcome.

Still..it was a proud day to be a Lyme patient!

[This message has been edited by Mo (edited 19 May 2004).]

Posted by neurochem1 (Member # 576) on :

Hi there lymenet;

Sorry to be offline for so long; I was out of commission a bit longer than I thought I would be...

Lets see; from quick reading (and I will get to those other messages eventually), there's about 7 or 8 birthday wishes so Happy belated birthday to all of you; Jeff; I WILL get those brass switchplates in the mail to you very soon.

I hope people are getting more settled with the new moderators; please everyone -remember that we are all human, and that some individuals have volunteered their time to try to keep lymenet a safe haven.

That does not mean that things are perfect, but just take a stroll over to sci med lyme and see what happens when one cannot draw a line in what to do with disagreement; it used to be a valuable new group...

The lobby;
terrific, and worth everything it took. Mo's kids are just little cupie dolls; Ellen estimated that over 50 came, but I think there were nearly 100 or so.

There were at least 15 people in each of the groups I was in, and many meetings happened simultaneously; plus all the folks from LI, Manhatten, Westchester, and Hudson Valley PLUS some out of staters. Many came with someone else.

It's looking more hopeful here, and I urge all of you to call or write to any New Yorker you know to now Lobby for OPMC reform to Gov. Pataki.

The senate responses were essentially that this bill is a no-brainer...so it seems that if it can be brought to a vote, we may just have a bill (after 4 years, ya think?!!)

A couple of our LLMD's family members came and lobbied as well.

We must keep up the pressure on Senator Hannon via NY State doctors calling him and urging him to put this bill out to the senate, and we must write to Gov. Pataki to pass OPMC reform.

I don't know if Ellen's latest action alert has hit here; I may have missed it.

I'm going to go back now and see what else is going on with all of you.

I send you good thoughts, and dreams of good health and the freedom to pursue it.

Sincerely,
Regina
[email protected]

Posted by minoucat (Member # 5175) on :

Regina and Mo, thanks so much for the update. Thanks to everyone who went! I breathlessly await the next installment.....Well, what else is there to do at one in the morning. I think my cat is hogging all the sleep in the house, the selfish thing.

[This message has been edited by minoucat (edited 27 May 2004).]