This is topic My father passed away Tuesday in forum General Support at LymeNet Flash.


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Posted by livinlyme (Member # 3773) on :
 
After much improvement over the past year of treatment for Lyme Disease, my father suddenly was swept away from life on this earth.
I would like to thank all of you for your help and support through this.. especially TC for the added pushes when I needed them most..
Since I still have 6 members alive in the family who are being treated, I will still popped in from time to time to see how everyone else is doing and throw out a question or two just to stir up some input and responses...
There is strentgh in numbers. seems I am getting more numbers on the others side lately,,, Look out public; the time is coming to become AWARE if you DARE!
Linda

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Can't do better, unless you know better!
 


Posted by cbb (Member # 788) on :
 
Linda,
Your family has had to endure so much because of Lyme disease.
I'm so sorry that you lost your father this week.

I understand how you feel because seven years ago, I lost my father to complications of untreated Lyme disease. (His diagnosis came too late & we knew too little.)

It's difficult to find something positive to hold on to, but his diagnosis, treatment and then his improvement are a blessing. Surely, the improvement gave him more quality of life than he would have had.

Sending you & your family love, concern, and support, but especially prayers that you be given the strength you need at such a sad time.
 


Posted by leeeannn (Member # 5690) on :
 
Dear Linda,
I am so sorry to hear about your Dad and your family. It is a horrible road to travel. We need to educate the "so called" Dcotors in this world! as well as the uneducated public on this nasty epidemic.
Leann
 
Posted by shassler64 (Member # 3479) on :
 
Hi!
Sorry to hear about your tragic loss.
Lyme sux!!!!I am really sorry.

Best wishes to you and your family,
Sue from Downunder.
 


Posted by treepatrol (Member # 4117) on :
 
livinlyme
Iam so sorry for you I hope and pray that God will give you piece in this time of loss. So Sorry
 
Posted by Lishs mom (Member # 2344) on :
 
Our condolences to your family. I am so sorry to hear about your father. Was his death attributed to lyme by the medical world? My prayer is that his passing was not in vain, and from seeing you here... I KNOW it was not. He has a beautiful daughter. I cant imagine loosing my daddy, Im so sorry for you.

With love
Theresa
 


Posted by cootiegirl (Member # 3216) on :
 
livin
I am so sorry to learn of your loss. How tragic. Know that you and your family will be in my prayers....
cootiegirl
 
Posted by Ann-OH (Member # 2020) on :
 
Dear Linda,
I am so sorry for your loss of your dad. If it is any comfort, please always remember that he was a very lucky man to have such a wonderful, caring daughter.

Ann - OH
 


Posted by buggy (Member # 3515) on :
 
Dear Linda

I am so sorry to hear of your fathers passing. Please know that you and your family are in our prayers.
John
 


Posted by livinlyme (Member # 3773) on :
 
I don't know how to update my email address on here..
I want to thank you all for your kind words, prayers, sympathy and support. You are all such a great inspiration to everyone...

To answer a few of your questions:
Yes.. it was a lyme related cause as to why we lost my father, although timing and lack of preparation were the worse part of the whole series of events that took his life..

He had severe dysphasia (Difficulty swallowing) the first mechanism wasn't working at all; the second one did rather well.
first off he developed a cold or allergy the day before which he filled up with more congestion than normal, the second was, but he had to shovel his food in all the time, he was always being told not to! that along with extreme mucous build up when he would eat. At dinner a piece of food got stuck in his throat and no one could remove it in time for him to get oxygen to his brain. The instructions were not accurate (911) for the situation; he had hair on his chest and the officer could not get the patches to stick, by the time he was given mouth to mouth and his hair was shaved the EMS arrived.. and resuscitation was administered too late..he died on the kitchen floor and was brought back only to be found severe brain damage (virtually dead)in a Coma and with no chance of recovery, his body was burning itself up. 108.68.
Tuesday afternoon he was made comfortable and his body began to shut down.
Please take heed and if your loved one has slight or severe dysphasia and they develope a cold I would take extra precuations. Even put them back on 'Thick-it' or something until they get past the congestion! Thinking back I guess there was more we could have done to prevent this.. yet truly, we have no control over the timing..
My father had many months of quality before leaving, something he did not have before the treatment of Lyme.. He was metally alert, was learning to walk again, we had him out on weekly trips to breakfast, lunch or the mall..Quality that he had not had for many years before...He left on a positive, which means more than anything in the world. He is at peace, and watching over all of us now. thank you for listening. and caring..
Linda

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Can't do better, unless you know better!
 


Posted by DiffyQue (Member # 3317) on :
 

Hi Livin,

I'm sorry for your great loss. Will say a prayer for you and your family. I hope for the best results that you all can get from your treatments.

Good Luck,

dq
 


Posted by GreanPea (Member # 3411) on :
 
Linda, I want you to know that I'm thinking of you and your family and I'm so sorry.

Don't forget to take care of you thru this.

Pea
 


Posted by dontlikeliver (Member # 4749) on :
 
Livinlyme,

I'm so sorry to hear this - thinking of you and your family.

Dll
 


Posted by lymeinhell (Member # 4622) on :
 
Linda

I am so sorry for your loss.

As I too have lost my Dad and Mom (within a year of each other) I know nothing anyone can say can make you feel better.

One thing I can share with you - Hold on to the good memories, talk about him every day, and he will always be alive in your heart.

God bless.

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Julie G.
___________
lymeinhell
 


Posted by WildCondor on :
 
I am sorry to hear of your fathers passing. Please know that you and your family are in my thoughts.

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Lyme Disease Help
http://www.wildcondor.com
 


Posted by kam (Member # 3410) on :
 
Sorry to hear about your father. Glad to hear that his quality of life had improved.

I too have the problem of not being able to swallow at times. I go to taking in liquids at that time.

Your message helped me to know to take this more seriously than I was.

The awareness regarding lyme disease has got to break soon. There are too many of us that have gone to long before being dx and treated.
 


Posted by MammaLyme (Member # 1257) on :
 
So sorry to hear of your great loss.
Just hold close to the thought we will all get cured and maybe your father's illness brought new clues for someone else's recovery.

Much love to your family.
 


Posted by livinlyme (Member # 3773) on :
 
Kam,
Yes, I hear you.
My father was put on unique sweet (xylitol crystals) vitamin research products makes them. Which helps the excessive mucous which causes the gagging.. mind you it helps, it does not get rid of it, just makes it less, although I do not know if mom cut back or stopped giving it to dad either but I know while I was making sure he got it, that it appeared he was less 'runny' in the nasal area.
I would take it serious, although we firmly believed that he had a better second device which made him able to eat "normal" food. I am sure you know what I mean by second device. Just never take for granted that it is enough to get you through the colds and allergies. Watch out for shoveling your foods too. He did this every meal, make certain to clear before adding more.

I will talk about my dad, if no think about him every day, I know I will surely miss him a great deal, I am looking forward to being with him when i leave this place.

It was reassuring that I had the opporunity to speak with someone who had 'life after death' experience (in 1991 4 times), a month previous to my father passing away. The story I heard places my mind at ease that my father is in a better place and watching over us now as I type.
Thank you all for your kind thoughts and prayers,
There is strentgh in numbers, let the public be warned!

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Can't do better, unless you know better!
 


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