LymeNet Flash: $48,000 for two days at Mayo Clinic

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»	LymeNet Flash » Questions and Discussion » General Support » $48,000 for two days at Mayo Clinic

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Topic: $48,000 for two days at Mayo Clinic

lou
Frequent Contributor (5K+ posts)
Member # 81

posted

This is what they charged Bruce Edwards for the ALS diagnosis. Told him to go home and get his affairs in order.

Bruce was the caddy for golfer Tom Watson. New book out about him.

So, is this how it went.....?

Doc in private practice starts him on treatment for Lyme. He doesn't get better immediately (Lyme is easy to cure, right?) or he gets worse (herx). His family and friends doubt the diagnosis. Who are you gonna believe, the guys who charged you $48K or the one who didn't?

Of course, it is possible to wait too long to start Lyme treatment. Not everyone can be pulled back from the edge, sad to say.

Bruce had no health insurance.

Posts: 8430 | From Not available | Registered: Oct 2000 | IP: Logged |

JillF
Frequent Contributor (1K+ posts)
Member # 5553

posted

That is so sad.

I have family friends who have a friend who 'has' ALS and has had it for over 10 years now.

I do not know this guy personally but have heard about him for years now.

I've talked to the couple (my family friends) about Lyme and told them to get this guy tested but they just laugh at me. They told me that Lyme must be the new 'yuppie disease' like Chronic Fatigue Syndrome was a few years ago.

Posts: 1485 | From USA | Registered: Apr 2004 | IP: Logged |

troutscout
Frequent Contributor (5K+ posts)
Member # 3121

posted

I tell people this...that I was suspected to have ALS, MS, etc....and THEN I tell them how they finally figured out that it WAS Lyme.

Just figured you folks might want to know.

They are usually fairly cemented in by the time they get an ALS dx.

But...you DON"T have ALS for 10 years...that my friend is NOT ALS>

Trout

PS...and, I agree...by then it MAY be TOO late anyway.

Posts: 5262 | From North East Iowa | Registered: Sep 2002 | IP: Logged |

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