LymeNet Flash: $48,000 for two days at Mayo Clinic

This is topic $48,000 for two days at Mayo Clinic in forum General Support at LymeNet Flash.

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Posted by lou (Member # 81) on :

This is what they charged Bruce Edwards for the ALS diagnosis. Told him to go home and get his affairs in order.

Bruce was the caddy for golfer Tom Watson. New book out about him.

So, is this how it went.....?

Doc in private practice starts him on treatment for Lyme. He doesn't get better immediately (Lyme is easy to cure, right?) or he gets worse (herx). His family and friends doubt the diagnosis. Who are you gonna believe, the guys who charged you $48K or the one who didn't?

Of course, it is possible to wait too long to start Lyme treatment. Not everyone can be pulled back from the edge, sad to say.

Bruce had no health insurance.

Posted by JillF (Member # 5553) on :

That is so sad.

I have family friends who have a friend who 'has' ALS and has had it for over 10 years now.

I do not know this guy personally but have heard about him for years now.

I've talked to the couple (my family friends) about Lyme and told them to get this guy tested but they just laugh at me. They told me that Lyme must be the new 'yuppie disease' like Chronic Fatigue Syndrome was a few years ago.

Posted by troutscout (Member # 3121) on :

I tell people this...that I was suspected to have ALS, MS, etc....and THEN I tell them how they finally figured out that it WAS Lyme.

Just figured you folks might want to know.

They are usually fairly cemented in by the time they get an ALS dx.

But...you DON"T have ALS for 10 years...that my friend is NOT ALS>

Trout

PS...and, I agree...by then it MAY be TOO late anyway.