LymeNet Flash: Are these common symptoms?

This is topic Are these common symptoms? in forum General Support at LymeNet Flash.

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Posted by salatheel (Member # 5786) on :

Three weeks after being bitten while on doxy my lymthnodes swelled up mostly in legs,groin,and neck. An herbalist told me about red clover stillingia which helped for the past 2 months but now they are starting to swell again. I also have blurry vision, floaters,neckache,backache and a persistent headache that doesn't want to go away. After working a full day my knees creak and my big toe hurts on one foot. Every now and then my heart seems to beat abnormally. This bite happend around feb 26th and I was on doxy within a week. I feel however I might have gotten Lymes earlier as a dog I owned dies of Lymes and Babseoisis 4 1/2 years ago. At that time I wasn't feeling great but nowheres near as I feel now. So I went to a walkin med and got tested for Lymes. They use Quest labs. The result was negative so I didn't do anything until this bite. What do you think? Are these normal symptoms?

Posted by Melanie Reber (Member # 3707) on :

Good evening salatheel,

Welcome to LymeNet!

I would definitely consider finding a qualified Lyme Literate doc (LLMD) ASAP with what you have described.

You live in an endemic state, you are exhibiting lyme symptoms, and possible co-infection symptoms too, and you had an animal with Lyme...three hits!

How long have you been on Doxy and at what dosage?

Quest is reliable for some things, but not for lyme testing usually. Your bloodwork needs to be done by a qualified LLMD and sent to a lab that specializes in Tick Borne Disease detection.

Another reason for a negative result could be that you were tested too soon. This happens often with patients after they are first bit. The problem is that your body hasn't had enough time to build up antibodies to the Lyme bacteria...so, none show up in a quick test.

Please post over in the ``seeking a doctor' section and be sure to leave your email so that someone can assist you in finding a good lyme doc, OK?

Here are the new member links, just in case you haven't been given them yet. It is allot of info to absorb...but it is critical to read all that you can so that you can become your own best advocate for proper healthcare.

LymeNet Links for new members: http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines: http://www.ilads.org/burrascano_1102.htm

Rose's 15 Facts for Newcomers: http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Symptom Check List: http://flash.lymenet.org/ubb/Forum1/HTML/021063.html

Abbreviations for Lyme-speak: http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit: http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Camp A and Camp B: http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Something to share with friends and family members: http://flash.lymenet.org/ubb/Forum3/HTML/008886.html

Again, I can't stress firmly enough that you really need to see a qualified Lyme doc as soon as you can...you only have one chance to fight this thing early on...

If this IS a re-infection...that would explain why you are feeling worse now...
the new bite may have increased an already lingering case and upped your lyme load...or added a few co-infection surprises. Be sure to ask about Bartonella...

All my best,
Melanie

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C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]

Posted by salatheel (Member # 5786) on :

Thanks so much Melanie! I understand it's going to be a long road but it seems there is much support here. Take care.

Posted by lazerorca (Member # 4689) on :

try and get a PCR done as quickly as possible. lyme bacteria doesn't stay in the blood long. it looks for areas that are somewhat deep and protected from your body's defenses. if u get a negative PCR, don't take this as u being negative for lyme. PCR has very low yield and getting a positive result even on patients diagnosed with lyme is very hard