LymeNet Flash: Please help

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Posted by Abbywriter (Member # 5669) on :

I am having a really tough time now....I don't know what to do...I am so overwhelmed. I don't know if I have Lyme...I have tested positive and been on treatment for eons...been off for about 4 years now.....was seeing two different docs in cali.....now having difficulty with that....I also have crohns and anxiety/depression so I don't know what is what anymore. I get so overwhelmed with all the information. I don't know if I should try to get back with a Lyme doc or if they will just try to overmedicate me. I don't know what is happening...except that I am having a nervous breakdown inside and can't seem to cope anymore...all I want to do is for things to stop in my head and for my brain/body and life to be okay. I feel like I am dying. Please help. Email me.
[email protected]
Deanna

Posted by Stella (Member # 3119) on :

I will e-mail you privately.

Keep fighting!!!

Posted by Lishs mom (Member # 2344) on :

Abby,
WE the american people, have been "cultured" to think we are "overmedicating" to save the insurance companies money.

My friend is a third world country nurse, where they medicate whole groups of people, sick or not, for months on end until the few they are watching have gotten rid of symptoms. She has been there for two generations now, the third is on its way, and they are not seeing adverse affects.

My daughter has been in IV medication, and no less than four orals at any given time for the past three years. (IV's only 14 months now) and her "immune" system profile is finally where it should have been before she got beat down with multiple tick infections!

Her physical response to all this treatment is that she is no longer bed bound, she can breathe again, her pain is coming under contrl she is no longer fatigued for three weeks after an afternoon out, and she is ROCK CLIMBING and showing her horse and trainign her horse again!!!

It took four years of CONSTANT medicating...

If you want to get well address the following:
diet
supplementation
antibiotics (the need for)
excercise (mild at first...no rock climbing for you yet)

this disease is holisitic, take it a day at a time, a WHOLE BODY healing approach.

Posted by griswoldgirl (Member # 5365) on :

I am not sure what is going on but just to let you know that when I herx from abx's or finally hit the wall back in November and finally got my diagnosis of lyme after being ill for 15 years--it was the phychiatric issues that stood out the most.

I was diagnosed as bi polar at age 44. I am still not in agreement with the diagnosis but the mood stabilizers help, so I take them. I am on pain meds (duragesic patch with breadthrough meds) anxiety medicaion, medication for cranial pressure plus all the suppliments and probiotics--IV antibiotic treatment.

I know that feeling of wanting it all to just stop even for a minute. I wake up sometimes and before my eyes are open I have had a thousand thoughts already-it is madning--it is my disease and I remind myself of that daily. I am heavily medicated but on the other side of all this I believe there is healing and that is what I hold on to.

Just dealing with crohns is hard enough-I saw a lot of that in my profession as an ultrasound technologist-I am not working now-can't for now.

so you see a therapist to help you sort through all this?

when you said that you were on treatment for lyme for eons, what type of treatment? Are you using a LLD? You have been off treatment for lyme for 4 years and feel symptoms are back? Just not clear on that.

Small baby steps is my suggestion and seeing a councelor to help you sort through all this.

I should of emailed you I guess but just started typing and am tired so I hope you do not mind I just put this in public forum.

hang in there

Cathy

Posted by kam (Member # 3410) on :

Abbywriter:

I am trying to pull myself out of a slump right now too so I am not sure how helpful I will be.

I know Lish's mom's post certainly helped me.

I also sat in on a chat today for people with MG. I have started a post called Enpowering yourself to cope with Lyme -The how to's. I adjusted it to fit Lyme instead of MG, because the information is good for a lot of conditions.

You might want to go to that post and see if it helps you. I know the discussion certainly helped me today. I also laying low today and not trying to do anything. Sometimes you just need to do this in order to regroup. I also find I need to know that things are not going to get done today and that is OK.