Came back from my nuro. Thanks to to this forum, I was prepared. The frist question that I asked,,what do you know about LD, answer - just as much as any other nuro (just enough to get by).
Then just as I expected, he told me that I might have MS, my reply same symptoms as LD, he agreed. Then we talked-he said may of his cases could be lyme related!
Told me to go back to my LMD.
Then he told me about a nuro, Dr P.C in Stonybrook LI NY, which is LLD. Got to check her out.
Hope that it for all my test, so I can get my meds, and get on with my life.
I don't know how you people do it. It takes me over an hour to write something to post, and it still does not sound right. The brain fog always gets in the way.
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quote:
Originally posted by Rita:
Where does PC stand these days? Lyme Literacy was in question for a while.
Since we are not authorized to give out name of Dr without their consent, I gave the initials P.C.
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I would be worried about the doc you mentioned at Stony Brook. She is a co-author of the IDSA guidelines which say that people like us do not benefit from long term treatment.
[This message has been edited by lou (edited 15 October 2004).]
quote:
Originally posted by lou:
Yes, I can see you are a bit foggy. Join the crowd. Last night I wrote two identical checks to pay the same bill. And couldn't remember the date, or even the year. Hope this is not a sign I'm going backwards. At one point, several years ago before treatment, I couldn't read. Words meant nothing.Thanks for the feedback on Dr PC in Stony brook. I will think twice or 3 time before I go to see her.
I would like to have an explination as to why Drs are so blind to the facts.
I would be worried about the doc you mentioned at Stony Brook. She is a co-author of the IDSA guidelines which say that people like us do not benefit from long term treatment.[This message has been edited by lou (edited 15 October 2004).]
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It should be illegal to make such ill people go through this