I have them in my hands and it seems to be an oscillating motion back and forth when my fingers are streched. my left hand seems to be affected more than my right.
i can notice the tremors in my shoulders when I do a "shrugging" motion with them back and forth.
my abdomen has a tremor motion whenever I contract them. like in a crunch like motion.
whenever I stand straight I can feel a slight tremor in my thighs. now if I am going down stairs I notice the tremor more than if I am going up stairs.
my neck has a kinda of "tremulous" motion that seems involutary. if I try to look at an object at one side and turn to look. if I hold my head in that turned position the tremor is prevalent. if I do a slow rotation of my head the tremor is prevalent like in a less fluid motion. same thing when I rotate my wrist.
any kind of lifting of heavy objects makes my tremors worse. like all over my body. only rest alleviates the tremors. I have wanted to lift weights badly to get back in shape but I am afraid to lift becuz I am afraid the tremors my cause me to drop weights and so on.
if I get cold, excited, or if I haven't eaten in a while or if I have had a lot of alcohol the night b4, it makes the tremors worse. I have twitching that occurs all over my body usually after that certain muscle has been used. when I rest it sometimes I will get twitching that occurs. I don't know if this is normal or not, cuz I used to have some twitching in my muscles b4 and my roommates have some twitching but it seems to be more often with me. I did notice that the first initial sign of a tremor back about 2 years ago seemed to occur after a night of drinking.
I am just very frustrated becuz I have tried being a trooper and making it through this treatment of lyme after doubting I really even have it most of the time. now I feel like I am doing this all in vain becuz from what I have read this sounds like essential tremor or some kind of metabolic disturbance or vitamin or mineral excess or deficiency. i wish my lyme clinic was considering the possibility that I could have another condition other than lyme. we have emailed my provider requesting things like scans to be done of my brain and spinal cord and possibly testing for other things like MS or ALS or lupus. and I want to get a physical neuro examination performed to determine the severity and type of tremor that I might have and if this is something characteristic of lyme or another disease.
I'm also curious.
------------------
cheers,
AG
Not clear to me how it was decided that was not Lyme.
I'm sorry you're struggling so with your tremor. I don't know how you stand it. My heart goes out to you.
I have essential tremor of the head and voice. Stress, hunger and lack of sleep make it worse. I have insomnia and severe problems with short term memory.
Overall, it's improved, but still there. Now no one can really see this but me.
Sometimes you can see it when my hair moves.
If I put my chin on my chest, that's when it becomes apparent. So obviously I can live with it. But I have found RX Amantadine.
I was misdiagnosed from 1989-1994 with myasthenia gravis. Diagnosed with LD April of 2003. Have received 18 months of treatment.
I'm awaiting test results for Bartonella from LabCorp thru my insurance.
I am currently on: first time Doxy ramp up to 400 mg daily; Amantadine for dopamine in the brain; B12 injections daily (doesn't hurt with insulin syringe).
I've taken Klonopin for 10 years at bedtime. I take low dose Elavil for sleep or pain. But the Elavil (seratonin) will reduce my dopamine levels. They're inversely proportional.
I also took Wellbutrin starting in l994 for a severe chemical depression diagnosed via brain mapping (Brain Electrical Activity Mapping or BEAM).
I don't take it now. My brain keeps changing with ABX and the Wellbutrin is just too much stimulation.
In the past for LD I've taken: 180 Rocephin injections & Flagyl; Zithromax; & Mepron.
I'm hoping to add Rifampin to treat for possible Bartonella.
I just saw my new LL/FNP (family nurse practitioner/member of ILADS)last Friday.
She listened to me. The greatest new thing was the Amantadine.
I had taken a few tablets for the flu in the early l990s before I knew I had chemical depression and LD.
All I knew, was that I felt more clear-headed with the flu taking Amantadine-------than without the flu.
I did not know why it helped. Back then I didn't have the internet.
After taking Wellbutrin, which augments dopamine in the brain, I also discovered that Amantadine helps with dopamine in the brain.
I've wanted to try Amantadine for a year, but was told no by my former LLMD.
I take Amantadine 100 mg in the morning. The internal tremoring quietens. My voice was strong on it the first day I took it.
Amantadine lifts depression beautifully without horrible side effects.
Also, immediately after taking the first B12 injection, my voice got very deep for a short time. By that night, I felt like a new person.
The Doxy has already thrown me into pain tonight. Someday, I want to eventually try Minocin for my brain, but I was afraid it would be too strong & kill my head.
I will probably have to re-treat Babesia with Mepron as I only took 2 bottles. My Babs symptoms are gone-----for now. We'll see.
My tremor of the head went wild on a 2-hour herx of Mepron. It was taken in combination with Zith, but Zith didn't cause the increased tremoring.
Then it just passed.
I was diagnosed in 1994 by Dr. J. a movement disorder specialist in Houston at Baylor. Ten years ago, he was the best Doc to see.
I just went & pulled my medical record from him. I don't understand some of the terminology------even if I look it up.
It states:
There are mild, low amplitude, 8-9 Hz, lateral oscillations of the head in a very slight "no-no-" fashion.
There is very slight anterocollis. There is a 1+ postural tremor at 8-9 Hz, most prominent in the wing beating position.
There is a slight truncal tremor and moderate bilateral isometric tremor in the hands.
Current exam is significant for mild lateral head tremor with slight left ptosis, mild voice tremor, and moderate isometric hand tremor.
She may be developing mild or intermittent spasmodic dysphonia; however, it is not severe enough to require treatment with botulinum toxin injections.
End of Record
Back then, Inderal & Mysoline were recommended. I've been on Inderal in the past, but never Mysoline.
My left eyelid (ptosis) which they said was congenital (laugh out loud)-----does not droop anymore after ABX.
I no longer have daily facial, ear or head pain. But I still have a very weak neck.
I can still develop severe pain in the left eyelid, teeth, forehead or back of head when on ABX that go to the brain; or Mepron which goes to the brain.
It has taken me a long time to figure all this out.
My new best friend is Amantadine.
Dr. B.'s Guidelines state it helps ABX to be better absorbed. It is also an anti-viral which is good.
I hope some of this might help.
I really wish you could see a Movement Specialist Disorder just to see what he has to say.
A neurologist should readily refer you to a good one.
Your tremor sounds more severe than mine. I bet they might have something to give you some relief. They are the experts in this.
I know it's just another label, but IMHO anyone with severe tremors should consider seeing a Movement Specialist Disorder at least once. That's what I did. I never had to go back.
Take Care,
Jan
[This message has been edited by RECIPEGIRL (edited 20 October 2004).]
quote:
Originally posted by lynnic86:
TreePatrol:
The tremors you described are exactly what I get. They are now controled with Primidone which I take every 4 hrs or I start to shake. Are you taking anything or have you found anything other than meds to be helpful?
Just curious.
Thanks
lynne
Yep abx's and bcomplex magnesium multi vitamin dont take your vitamins or acidophilis within 2 hrs of abx
Do any of you have the tremer that we saw of Roy Horn...from Siegfred & Roy...on his tv interview w/Maria Shriver?
They didn't explain what that was...but my husband has that!
He was dx 2 yrs. ago with "essential tremor"...but dr. told him the meds would be worse than what he has. He is on NO MEDS.
His hands are non-stop jerking, feet, & legs. If you sit on a couch with him, you feel the vibrations wherever he sits.
Thanks for your help. I had him tested for lyme too; he's negative according to IGENEX.
He has underactive thyroid..otherwise in good health.
I was dx w/type 2 diabetes in Jan. He's lost 50-60 lbs. since then giving up his cookies/sugared items. My 15 lbs. lost only!
Thanks for any help & your expertise.
Betty G., Iowa
My husband's tremors were always diagnosed as Parkinsons. All neurologists: "you have Parkinsons" --- Do not believe it!
After treatment, all of which I have talked about on this board (medical) we are both well in every respect and leading a wonderful life again. It was hard work, cost a ton of money, but we did it. My husband is close to 79 and I am not far behind. So it can be done -
But only if you address all aspects, i.e. Lyme, toxicities (metals and chemicals), viruses and parasites, and your emotional life!
Best wishes to all.
First tremors were eye tic right side, and right sided tremor in hand and times would hand just would work right.
Sometimes when reading while holding paper I will notice arms shaking back and forth, longer that position is held, the stronger it gets.
Lymiecanuck