"You want to be bed ridden."
"You werent feeling some things until you read it online."
LOL My symptoms havent changed at all in 6 years, just have become so bad I can hardly stand or think. Oh and I didnt have the internet or comp for that matter until about 6 months ago. So that blows his theory no?
Well im just venting i suppose. I was really really hurt when he said that, it was a major slap in the face. I dont know about any of you but i would litterally cut off my arm to be healthy again.
Ive been felling on deaths door, when i think i cant get worse with out croaking, i manage too. Ive only been able to tolerate 20 mg of doxy a day, which doesnt do squat im sure, but im slowly working up the dosage, I herx horrible. The panic attacks and neuro stuff are god awful.
I dont have an llmd, none in my state and too sick to travel so all i can do is slowly up the doxy i can get until its a high enough dose. I sure hope all of you are finding some sort of relief. It breaks my heart knowing you all are suffering terribley too. Take care of your selves.
BB
It's happened to me a lot, so I know how upsetting it can be. Just try to take it with a grain of salt, and know that YOU know it not to be the case. YOU know that you would give anything to be healthy, and are trying to become healthy in every way you know how.
Take care.
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cheers,
AG
It's so hard when you feel sick and noone understands...
He may learn the hard way.
Do not forget probiotics to help with stomach problems that will occur..
And another twist on Trees note,,lack of it will cause problems also..maybe anger and a wise crack mouth...or tree may be right and neuro symptoms have hit the brain.
[This message has been edited by lymemomtooo (edited 21 October 2004).]
There is going to come a time ( god granted your husband doesnt keep stressing you out) that you are going to be able to put all this disease behind you. YOU WILL PUT IT BEHIND YOU!
And then perhaps, you may also need to put your husband behind you.
It sure sounds shallow but I have a live in who is a royal jerk. He has laughed at me, called me names, told me to "TAKE A PILL", even recently called my mother at work and told HER
to convince ME to get on Zoloft who then gladly tells me I have a chemical imbalance in my brain and not lyme.
I have gotten to the point I am numb to all their comments, and live and fight this disease knowing one of these days?
They can kiss my arse while its packing bags and walking out the door!
Sorry that you aren't getting any support at home.
Have you tried any adjunct therapies with the doxy? Warm baths( 103-104 degrees) are soothing and can trigger herxing. You control how frequently you soak. Saunas would do the same thing. If you can do light exercise, stretching is good, to put more oxygen into your system you will upset the keets too. The keets don't like heat or oxygen. Our llmd says that ideally you should exercise and then soak/sauna(10 minutes) for best results. He also says to back off when herxing badly.
Also magnesium is very helpful to regain health. Many small doses are needed daily but not within two hours of doxy, so it's a scheduling issue.
Lots has been written here about using magnesium, heat and exercise to help kill bacteria.
Perhaps you have some yeast issues too. They can feel like herxes. Pro-biotics are a must as well as eliminating carbs and sugar. For me wheat is the worst problem. I can tolerate other whole grains occationally, but wheat really triggers yeast problems. There are prescription drugs to control yeast. I prefer oil of oregeno, after a few day I feel much better.
Also when you eliminate the carbs and add GREEN vegtables in their place you change the ph of your body making yeast less likely. Changing the ph is also a good way make your body less microbe friendly.
I hope you start feeling better.
Mel
My wife for a long time said that I'm making things up. For all the doctors that I have seen and could not find anything wrong with me indicates that I'm a hypochondriac.
Now that I'm in my second relapse, getting educated on lyme, printing some of the post and articles found on the Internet, she is coming about slowly.
Hang in there.
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[This message has been edited by Alex1950 (edited 21 October 2004).]
Our bodies and minds are broken, and if they love us, they get horribly frustrated because they can't fix us.
My partner is one of the most caring guys around and he goes off on me at least once a week about why haven't I unpacked yet, why this, why that, why am I in bed where he left me in the morning.
I remind him of the good days I have when I can cook dinner, go out to a movie, do the treadmill.
I have to keep remembering that he isn't angry at me, he's frustrated that when he met me I was whole, and now I'm not. I got so hurt the last time he went off on me that I told him he didn't need to live with me, and sobbed for hours.
I don't know if this is the experience of other people with their spouse, but if they love you, it's hard to see us in pain and they lash out in frustration.
Of course, some spouses are just mean spirited, and it's those you have to dump once you are stable with the illness.
We love you and don't forget it! He does, too, he just has a difficult time with the illness.
Like Treepatrol said he needs to be careful that which he speaketh!
Peace and Blessings,
Maggie
I know people can be very non-understanding when it comes to illnesses.
My family has dealt with this on several illness, not just lyme.
Hope he can overcome his attitude with you so he can help your stress level instead of hurt it. The level of stress can surely keep those keets in your system stirred up.
Thinking of you,
Amanda