LymeNet Flash: Results at Last

This is topic Results at Last in forum General Support at LymeNet Flash.

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Posted by Alex1950 (Member # 6308) on :

Just came back from my pyhch and lyme Dr appointment.

I am giving my Pyhch lessons on the pearls of lyme. He is very receptive to this disease!

He even indicated that he is going to review some of his cases. With the education he is getting from me, he suspects that they might also have LD.

I indicated that as much as 1/3 of the phych cases are lyme related.

Lyme Dr visit went ok. After two months of test, and seeing the Drs, being placed on Rocephin for 2 months, follows by months of oral.

Getting my PIC this coming Monday.

Since I had lyme for over 20 to 40 years, I have some nuro damage problems, Dr indicating that it would take over a years to correct itself or it could be permanent. Also there could be other problems, but he won't be able to tell what they are until I get better.

I know for sure that I have nuro complications, can feel it (if I pace an ice cube on my left leg, it feels warm)! Just hope it will go away, after my treatment.

------------------
Alex

Posted by RECIPEGIRL (Member # 5884) on :

Alex,

I'm so excited for you. After all these years, you're finally getting real answers and treatment.

Thank goodness. Now you're going forward.

There's nothing like getting the diagnosis confirmed and meds started.

Congratulations!

My LLMD put me on Actigall to protect my gallbladder while on Rocephin. It's RX, but it's actually a natural bile salt to be taken with meals. (Urisidol is generic)

It will bind up your supplements, so you have to avoid supplements at mealtime.

Remember, milk thistle for the liver. If you can keep that liver detoxified, then your less likely to have gallbladder problems. To me, the liver & gallbladder
are all connected.

You don't want your gallbladder to spasm. So try Magnesium Citrate Capsules to help that.

Wow, I can't believe the psych listens to you about LD. That is a huge coup d'etat for you & Lyme Disease. Think of the future patients it will help.

I have only a few really good articles on neurolyme, but if you want the links I can find them for you. Just let me know.

Well, good luck on getting your PIC line in on Monday. Don't have any tips there because I had the Rocephin injections.

Glad you liked your Support Group. Was that the first time you ever saw another LD patient? It was for me when I attended my first Support Group meeting. They looked just like me.

I was given this handout by our Support Group. It's just some background reading about starting Lyme treatment. There was no author provided.

I don't agree with everything in there. I believe in sleep & pain meds. Like I say, it's just some informational reading. It's pretty good. I printed mine out.

Late Stage Lyme Disease Patient Information
http://www.angelfire.com/me2/StarShar/Herx1.html

Also, the Group handed out this chart of symptoms. It was like a goldmine to me. I had searched so long for answers and it seemed like they just put them in my hand in one small instant.

You'll want to print it out too. It's long. The first two pages are narrative, but skip onto the charts & it tells how LD can affect each body system.

It also lists journal citations which your Psych would just love.

It's in PDF file form so it's easiest to print out & have on hand to refer to later. I still look at mine today.

Click on the link & scroll down to the green indicator to SYMPTOMS & click again.

"Lyme Disease Symptoms & Characteristics"
http://www.lymeinfo.net/lymefiles.html

Please disregard this next link, if you've already read it.

It's an excellent article by John D. Bleiweiss, MD. (Sadly, he had LD & "they" tried to smear him publicly for treating LD patients & he committed suicide.)

"When to Suspect Lyme"
http://cassia.org/essay.htm

Gosh, I hope all the links work; can't check them until I've sent the reply.

Let us know how things go for you.

Take Care,
Jan

[This message has been edited by RECIPEGIRL (edited 21 October 2004).]

Posted by lookin4answers (Member # 4974) on :

Wow, that is great that you have a psych that is willing to listen to you about LD. Wish there were more like that.

I do have my 7yr old seeing a psychologist and she was very interested about lyme and the ABC's of it and how it affected children. I sent her some info after the first visit. Our second visit is next week.

Posted by Alex1950 (Member # 6308) on :

For the small percentage of medical professionals who are open minded and are willing to learn something new, is one plus for all of us and to the people walking around in a fog not knowing why.