I know she has the report because the Radiologist office told me they forwarded it to her. I left her a message and asked her to please not make me wait all weekend or I would worry myself to death.

I have had alot of disconfort in that area for a few months but I passed it off as gastric probems. The lump I found is as big as 3 finger tips put together on the wall surface. I wonder if it is larger on the underside due to the disconfort. The other one she found is about an inch to the left of that one about dime size.

I don't know if this could be Lyme related or what. It worries me to death because my mom died of Breast Cancer when I was 15. I know I am not supposed to think the worst but the longer I have to wait the more the bad thoughts creep into my head.

I couldn't even sleep last night. I thought the Lyme was rouph but this is the worst!!!
 

I know it's easy for me to say, but try not to worry yourself sick while you're waiting for her to call.

Try to keep a positive attitude.
Thankfully, every lump that is found is not malignent.

Keep in touch & let us know what your dr says.
Sending lots of concern & support!!
Will be praying that you get the best possible news on Monday.

I know I shouldn't do this to myself. I have been holding up pretty well under the circumstances.

A few years back I found a lump in my abdomen and when they did an ultrasound and confirmed there was a groath on my ovary I completely freaked out!!!

Lukily that turned out to be a large blood cist. I hope this turns out the same. I didn't freak out at all this time. I am just slowly losing my mind!

Thanks for the support. I just needed to vent a little. I don't really won't my family to know I am worried.

Cindy

[This message has been edited by Softballmom (edited 20 November 2004).]
 

I'm real proud of you not freaking out this time! (applause for Softballmom)
And it helps keep a positive outlook when you have a previous experience that was not the "big C".

If you need to, you can vent all weekend.
I'll read everything you write & I'll keep talking with you.
Then I may take a turn next weekend.

 

Thanks alot My oldest is 13 but I haven't told her at all. My husband I know is worried enouph allready so I am pretending to be very touph for him. He already has so much on his mind because I have been so very ill this past year since the Stroke and everything that else that has come from the Lyme.

I worry about him just worrying about me. So I have got to where I hide alot from him. Unless I am fearfull of something serious like a siezure comeing on or something like that. That is the only time I make him aware of things anymore. He knows I don't feel well because I can't do alot but I don't talk about it anymore.

In fact, I haven't told my husband a lot of what I was dealing with when I was being treated for Lyme, Babesiosis, & Bartonella.

He just can't handle medical stuff at all!!
He's 66 & hasn't seen a dr in 26 yrs.
Doesn't even HAVE a dr.
Don't know what I'm going to do with him about that.
Even our children haven't changed his mind.

I'm blessed to have 4 children who have been very supportive thru everything.
Sons who are 42, 38, & 34.
One daughter who is 40.
Don't know what I'd do without them.

Also, blessed with 8 grandchildren - ages 14 down to 5. My 12 yr old grandson has Lyme but he is improving under Dr Jones's care (pediatrician in CT).

I'm so very sorry you've been so sick with Lyme disease. It really can change everything about your life.
I hope you're improving & will continue to do so.

God bless!
 

Other than that, seems they could give a flying hoot whether or not we have to wait out an entire weekend for results. And, believe me, I do understand how you're feeling. Every second seems like an hour. And every hour seems like a week. It's pure agony and you don't know how you're ever going to get through it.

When I've been in the same situation that you're in, I've tried to keep telling myself that "In X amount of time from this moment, I will know what's going on". It helps for about, um, 5 minutes until I start agonizing about it again.

I don't have any solution, but thought you might like to know that I really, REALLY do understand what you're going through.

Might as well go back a couple of centuries and be put on a torture rack, eh? Same difference.

Hang in there! You will make it even though it doesn't feel like it at the moment.
 

It has been hard but I have strong faith which helps me through alot. However that faith has been challenged a bit more than ever lately.

Thank you very much for talking with me tonight. It has really helped. I think I will try to go get some shut eye.

[This message has been edited by Softballmom (edited 21 November 2004).]
 

You need a good night's sleep since you didn't sleep well last night.

Time for me to call it quits for the night, too.
 

Yes Dr's have no sympathy. It makes you wonder if they ever have to take tests? I guess with them being Doc's they get special treatment and probably never have to wait.

This isn't my LLMD this is my PCP. She is one that doesn't believe the lyme disease thing. She won't come out and say it but she made a comment about one of her patients seeing a specailist for Lyme and he put her on a medication for yeast that serverely damaged her Liver. So I had to spend several minutes defending Dr. J's reputation. However with Dr. J being so far away I have to keep her.

I used to think the sun rose and set with her but now since the Lyme I hate to go see her. When they checked my BP thursday it was 140/80 way high for me. The nurse said have you been rushing or anything this morning?

I wanted to say no, I am stressed because I had to come here!!! But I didn't. But that is the truth.

Well I am off to bed. Thanks so much for the support you guys have helped me tonight.

Cindy

[This message has been edited by Softballmom (edited 21 November 2004).]
 

I'm truly sorry for all you are going through, I can't imagine finding the lump, then the doc finding another and now waiting on results.

My initial thought is that since the doc has the results and has not contacted you, this is probably good news - but not hard and fast rule.

I try to think of it that way while I get ready to call monday morning.

Good luck, Hope there is another answer.

How are you faring today? Thinking of you....
 

Hi HSM

I am trying to keep a positive attitude today. Trying not to allow those bad thoughts creep in. It is still early so wish me luck.

Your right Dave. I can't read over what you said and my Lymebrain can't quote you but I remember it was good.

Thanks Lymesux I hope that it is OK. I would like to think that it is. Still love to slap the Doc around a little though!
Just kidding.

Cindy

[This message has been edited by Softballmom (edited 21 November 2004).]
 

Such a shame when Lyme patients have to travel so far to get the treatment they need, & then have to listen to unprofessional comments from the uninformed drs.

Don't have to answer, but I was wondering if Dr J is in North Carolina & what state you're in.
 

Yes Dr. J is in NC, but I am on the other side of the state. Right at a 4 hour drive for me one way. My next appt. in Dec, We plan to stay overnight. The trip is just too long for me make in one day. At least it is right now while I am still so sick.

Luckily on my last appt, my husbands boss who also has Lyme and see's Dr. J let us ride with him on the Company Jet. But Dr J ran behind and it caused my husbands boss to be late for a business appt for having to wait so long for me. He was very nice about it but I dought that I will be able to fly with him again. I totally understand why and was very appreciative for him letting me fly the first time.

Cindy
 

As if Lyme wasn't enough..

I echo Dave, there are far more conditions and possibilities that are relatively benign and easily treated, and even Lyme related.. than the very small odds that this is what you are fearing.

Though, worst cases are what we sometimes dwell on even when the odds are slim, especially when the Docs make you wait the weekend!

Still, even if further investigation is reccomended, there are a great many things this could be.

Hope you can find some peace in that idea while you wait it out..though I know is far easier said than done.

Hoping you have answers soon,
Mo
 

I am doing much better today. Talking about it has really helped. Just sitting around the house letting it fester in my mind was not good for for me at all.

Cindy
 

Charlie
 

That does make me feel better. I wondered if it might be related to Lyme. I have had problems with ganglian cists and the other blood cist I minchened.

I had one removed from my left wrist in 2000, and my Lft ovary and tube removed with the other cist in the same year. I have a cist on my right knee as we speak but it is small and poses no problem so I have never had it removed. it has been there for 3 years.

I made the mistake of doing a search on Chest wall masses yesterday which really did not help matters AT ALL!!!
 

How hard is it for her nurse or her to pick up the phone and say everything is OK. I called the radiologist back and they did confirm off the computer that the report was forwarded to her on the 19th.

This really sucks!!!!

Cindy
 

I would not have been so patient. Call first thing in the morning! What a rat!

We're pullin' for ya!

------------------
oops!
Lymetutu

 

I would definitely be checking on it in the morning.
 

------------------
oops!
Lymetutu

 

I asked her nicely was there some kind of problem contacting me. She said the message you left yesterday got cut off and I didn't get the number. I said what about the other messages. She said what other messages? YIKES!!! Is this a Dr's office or what? Lets hope nobodies dying or anything.

My husbands boss who has Lyme had told me that his PCP was really good and had educated himself on Lyme disease so I called his office this morning. They said they were not ecepting new patients.

When I told her that I had Lyme Disease and my Dr. was not keen to that and I really needed a dr. in my area that understood this and could treat my needs. She put me on hold and came back said we have a really long waiting list and don't normally do this but in your case I am squeezing you in on the Nov. 29th. Yipee!!!

Out with the old in with the new!

[This message has been edited by Softballmom (edited 23 November 2004).]
 

quote:

---

Originally posted by Softballmom:

Out with the old in with the new!

---

VERY glad your test was negative!

------------------
oops!
Lymetutu

 

I am still a bit curious as to what the lumps actually are even though I am not worried that they are anything thing serious. I didn't even ask the nurse this morning, but I am going to follow up with this doc and with Dr. J. in Dec.

Thanks to everyone for being so supportive.
 

Enjoy the holidays.
 

Hey Cindy,

I have been away for a bit and am just now reading your post...I wish I had been here to offer you support during your waiting for the test results..

Sorry it took them so long to get back to you, but I am so happy that the tests came back negative!!! Our prayers were answered.

I hope things work out well with the new doctor!!!!

Keeping you in my thoughts and prayers.

~Missy
 

Something went wrong with our ohones on our street so I have just been able to log back on today.

I think the new Doc will be a welcome change. I have very positive thoughts on following up on the lumps as well.

I have also enjoyed the chatting on general it is also a welcome change. I think I will be spending more time over here if that is ok with everyone.

Thanks again for all the support
Cindy
 

I had a cancer scare myself when one of my blood tests two years ago came back abnormal and I had to go have a bone marrow biopsy to see if was multiple myeloma or lymphoma. I was scared out of my mind! First, the waiting and waiting. The test was so painful too. Lyme can do wierd things to the immune system and set off other things. I still have to get my blood checked for this every six months.

Yes it is much different in general and medical. That is the way it is set up. There really isn't conflict here or on medical, although it has happened but not like OT.

Good luck. Happy Thanksgiving with your family! I am sure you will love and appreciate and hug them all even harder this year.

Lisa