LymeNet Flash: Hi everyonee

This is topic Hi everyonee in forum General Support at LymeNet Flash.

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Posted by LymeinME (Member # 6849) on :

Hi, I'm new here. I've been visiting the site for a couple of months and decided to register.

I live in Maine and have lyme. Diagnosed finally 2 years ago and doc seems to think that I've had it for 20 years. Which answers alot of questions.

Two years ago I started abx and took for about 10 months, relapsed after 3 months, and started again for 3 more months, relapsed big time with serious neuro problems, tingling in arms and legs and big time memory problems and change in personality. My doc up here said he didn't know how to treat me for the neuro stuff and referred me to a doc in NY. Two weeks ago I also say a neurologist in NY that specializes in perepheral neuropathy.

It looks like we will trying IV antibiotics. I have looke into the MP, but it seems pretty scary, and Ny doc doesn't want to do it.

For those of you who have had IV what type of port do you use, to the chest or through the arm with tubing through the chest. Just curious, in case I have a choice.

Anyway, this site has been very informative and look forward to participating.

Posted by Lymetoo (Member # 743) on :

Welcome, LymeinME...! Cute name!

Why don't you copy what you wrote [cut and paste] and repost it over in Medical. Many never get adventurous enough to come over here. They miss alot 'cause sometimes we PLAY over HERE!

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oops!
Lymetutu

Posted by lymemomtooo (Member # 5396) on :

Lim, I have no knowledge about ports,but my daughter has has two above elbow picc lines..The first one did not have a stat lock and got sweaty and fell out..It had been in for a while...The second one was doing fine and was also in for a good while but developed a blood clot..

They are now doing peripheal IV's every Monday and she is pulsing Rocephin from Mon night until Fri. am. This setup is not as good as a picc line..And they only last a few days. We have had many problems with it moving and with missing the veins..It is good for someone in the hospital that is bed bound..

Also welcome on board, I do not think I am the best with info, but with baptism by fire, I have discoved some things and had some great help from some lyme advocates, some great Drs and lymenet.What would I do without lymenet? I would be locked away probably..

Now for the fun that lymetoo mentions, I am not sure but there are often a few laughs on this forum..Sometimes it gets a little wild. For the different, go to off topic..It is often too much for me. I am much more comfortable to stay with medical and general. Good luck.lymemomtooo

Posted by LymeinME (Member # 6849) on :

Thanks Lyme mom. It's good to know everyones experiences. So picc is in the arm, is the one in the chest port. I'm not sure, these are new words for me.

Not sure if I replied right, how do you reply without quote?

Posted by LymeinME (Member # 6849) on :

oops

[This message has been edited by LymeinME (edited 29 January 2005).]

Posted by LymeinME (Member # 6849) on :

Thanks, look forward to the fun. God knows we have way too much seriousness with this suckie disease

[This message has been edited by LymeinME (edited 29 January 2005).]