[or NOT?!] wish it was just to say hello and I'm doing fine!You've not been treated for babesia or bartonella? Even if the test was negative?
About going away for two weeks, try not to get too stressed... I have always found that the disease 'moves slowly'(whether you are getting a little better or a little worse). In fact stress itself can spur a bad period of CNS symptoms. Unless of course that your symptoms are THAT bad. If so, you may want to ask your doc. to switch you to another abx. like Doryx (or Doxycycline), Ceftin or Spectracef. Each of these has proven effective against CNS Lyme for me at times. (Plus, 7 mo's straight on one type of abx, is a lot IMO.) You may need a switch.
Lastly, I personally have found IV abx to be much more effective. Whenever I did IV regimins, I achieved remission for 12-18 mos. According to the three LLMDs I have known, when it comes incapacitating CNS LYME, IV is most often the most effective way to get better. The most difficult part is getting the pre-approval from your insurance.(They can cost over 10,000 for three months treatment)
Keep researching as well because there are many different 'angles' at LD. For example, I know Biaxin can be brutal on the stomach and this can cause yeast problems which exasperates stomach prolems and subsequently, in-direct nervous system problems. Hope this helps...I know it may be a lot more then you asked for! Hope you feel better.
Bob
quote:
Originally posted by RJPII:
Hi...I have gone through similar trials. Hang in there. That's good your diet has improved. Stay disciplined and watch those various forms of sugar and sources of yeast. This is tough for me as I am thin and only get thinner when I completely starve out the yeast. (esp. no plain pasta, sugar, white breads.)About going away for two weeks, try not to get too stressed... I have always found that the disease 'moves slowly'(whether you are getting a little better or a little worse). In fact stress itself can spur a bad period of CNS symptoms. Unless of course that your symptoms are THAT bad. If so, you may want to ask your doc. to switch you to another abx. like Doryx (or Doxycycline), Ceftin or Spectracef. Each of these has proven effective against CNS Lyme for me at times. (Plus, 7 mo's straight on one type of abx, is a lot IMO.) You may need a switch.
Lastly, I personally have found IV abx to be much more effective. Whenever I did IV regimins, I achieved remission for 12-18 mos. According to the three LLMDs I have known, when it comes incapacitating CNS LYME, IV is most often the most effective way to get better. The most difficult part is getting the pre-approval from your insurance.(They can cost over 10,000 for three months treatment)
Keep researching as well because there are many different 'angles' at LD. For example, I know Biaxin can be brutal on the stomach and this can cause yeast problems which exasperates stomach prolems and subsequently, in-direct nervous system problems. Hope this helps...I know it may be a lot more then you asked for! Hope you feel better.
Bob
I have been tx for babesia/bartonella,ie co-infection, but not since my second lyme exposure. I'll have to remind my LLMD. I have been on biaxin earlier for eight months with not luck. I am running out of oral tx options. I was unaware of the insurance problems and IV tx. I do keep asking my LLMD for IV tx. I do appreciate all the info. Take care!
Glad to see you back! [or NOT?!] wish it was just to say hello and I'm doing fine!
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oops!
Lymetutu
