This is topic Lyme Disease Summit in York PA in forum General Support at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/12482

Posted by PinchotGail (Member # 5066) on :
 
Article in our paper today.......they want to hear from lyme patients!!!! PLEASE COME, IF YOU'RE IN THE AREA.....date is next Thursday 5/6.

The lyme bill also got re-introduced into the legislature yesterday....here we go again!!!

Gail
http://ydr.com/story/health/66812/

Conference to address Lyme disease in county
York has the third-highest rate of the disease of any county in Pennsylvania.
By TOM JOYCE
Daily Record/Sunday News
Wednesday, April 27, 2005

At bottom: � LEARN MORE � IF YOU GO
According to the federal Centers for Disease Control and Prevention, York County has the third-highest rate of Lyme disease in Pennsylvania.
But state representatives Ron Miller, R-Jacobus, and Bev Mackereth, R-Spring Grove, knew that York County had a high rate of the disease before they saw those numbers. They knew it because people who lived in their districts told them about it -- people who had the disease, or who were concerned about the people around them who had it.

Now Miller and Mackereth are planning a seminar on Lyme disease at the Susan P. Byrnes Health Education Center on May 5. The two-hour session will include medical professionals talking about how to guard against the disease, and how to cope with it if you should actually contract it. Miller said they're also planning a round-table discussion involving people who have the disease. He strongly encourages members of the public to show up.

As a state lawmaker, Miller said, he can do little to discourage a tick-borne disease. He can, however, use his position to try to make people aware of it, and take steps to guard themselves against it.

According to the CDC, infected deer ticks spread Lyme disease. The agency says that York County has the third-highest incidence of the disease of all the counties in the state, with 100.45 cases per 100,000 people in 2003. Lancaster County had only 39.28.

People who live or work in residential areas surrounded by tick-infested woods or overgrown brush are at particular risk of contracting the disease, according to the CDC. Recreational activities or jobs that involve being in the woods also put people at risk.

Other than that, Miller said, epidemiologists don't seem to know what gives one area a higher susceptibility to the disease than another.

Mackereth said the goal isn't to unduly frighten people, but to give them a healthy awareness of a potential health threat in the county.

"We just thought we needed to begin the education," she said.


LEARN MORE
For more information about Lyme disease, go to http://www.cdc.gov. Click on "A-Z Index" at the top to search alphabetically.


top

IF YOU GO
What: Seminar on Lyme disease prevention and coping strategies

Where: Susan P. Byrnes Health Education Center, 515 S. George St., York

When: 1:30 to 3:30 p.m. May 5

 


Posted by PinchotGail (Member # 5066) on :
 
.....bump!!

For GEDEN and FISH you're in our area too!

Who am I missing?

Trout: how far away for you???

Gail
 


Posted by GEDEN13 (Member # 4151) on :
 
gail , i got your email.thankyou.

though i would like to attend,i am to have surgery on my right knee,for the 3rd time.(may 10th)

my last surgery was an open synovectomy.postop dx was lyme arthritis with extensive synovitis.

i am very limited to the distance i can walk.appox.,100-150 feet..i am taking percocet ,lexapro ,nortriptyline and using the duragesic patch,for the pain.

orthopedist is going to determine with this surgery,if i should have my knee replaced.or just cleaned out ,like the past few time's.

this is the result of lyme.i, more then anyone would like to attend.but my situation ,forbid's me.i would truly like to support you.but at this time,i can't.

it upset's me
,that i can't support my own cause. though i do wish you well, and other's who attend.

thankyou for bringing this to my attention.....gary


------------------


 


Posted by PinchotGail (Member # 5066) on :
 
Hi Gary,
Oh man sorry to hear about your knee! Jeez 3rd time too....I sure wish you a speedy recovery.....Put up a post and let us know how you are doing ok??

My husband had his first arthroscopic surgery in July right after his lyme diagnosis. He went to outpatient place in M-burg. Dr H. from Orthopedic Insitute did his......which is all interesting because 11 years ago, he had surgery on 2 bulging disks due to degenerative disk disease....at age 34!!!

I'm sure it was due to lyme now that we got him diagnosed. I just wonder how long he and I had.......Thank goodness my girls seem o.k. but they each have co-infections and are also being treated since Sep 04. I still seem to be the sickest since Fall of '03....

Take care you are with us in spirit!!

Gail


 


Posted by GEDEN13 (Member # 4151) on :
 
thankyou gail...

i just had an mri on my spine last month.show's bulging disc's and degenerative disease.

i guess i should look farther into this.i am 50..spine is painful.

i live in buck's county.anyway,thankyou for bringing this to my attention...

i wish you well at the lyme meeting.i would like info/update ,if possible..

be well...gary

------------------


 


Posted by fish (Member # 4096) on :
 
Hi Gail,

This is terrific! I am going to try try try to come. Very important. So glad the bill was reintroduced.

I got your email today. Thanks. I will introduce myself to you. I may have a problem finding care for my kids after school. I hope this won't prevent me from coming.

Thanks for doing all this! Looking forward to meeting you all.

Leslie
 


Posted by digirl02 (Member # 7177) on :
 
I'll be attending. My sister lives in York. My mom is driving me up and the three of us are going. I sent her this info and she already had it and was planning to go. She knows a lady who has lyme as well and also will be going.
 
Posted by PinchotGail (Member # 5066) on :
 
Thanks Gary, yes I'll be back to give a recap on Thursday night or Friday. You take care.........

Leslie, I look foward to meeting you!! And if you can't find a sitter, bring the kids!!!

Diane, I think we met your sister today via email......is it Julie? See you as well Thursday o.k.!!

More excited because today, was contacted from Harrisburg from the Policy committee. Besides Dr. B. doing his visual presentaion, we'll have our own Dr. D. from York, Pat Smith is coming, and so is Jeri Wier president of the Natl. Lyme Association. Two folks from the state health dept also.....hope they have some good stats. We have many lyme patients also that want to speak and share their stories.

Gail



 


Posted by GEDEN13 (Member # 4151) on :
 
thank's gail, don't forget to have alittle fun while there. good luck ,gary

------------------


 


Posted by digirl02 (Member # 7177) on :
 
Gail,
yes my sister's name is Julie.

Diane
 


Posted by lymemomtooo (Member # 5396) on :
 
Gail,
Sorry I did not make it..Tried my best..Didn't leave the Dr as early as I had hoped..Then got behind construction trucks and buggies on my attempt to do a cross country race. I was very frustrated..At 3 I was only in Paradise and just gave up and headed home..Knew I had too many miles and not enough time..

My husband was able to come and stayed thru most of it..He said he was crying over one of the stories..Also he was impressed with Dr. B. He said it was a really nice event..And that you seemed to have a lot of press coverage..Said it was a very well planned meeting.
 




Powered by UBB.classic™ 6.7.3