2 years ago my reg. dr. agreed to put me on doxey 100 mg 2xday for 6 mo. I started getting a little better.

This Nov. I finialy have a LLMD. A Dr. I can trust. Imagine that!! But getting better just isn't happening in my time frame.

Some days I just get so tired of the daily pain. I was on doxey 100 mg 3xday & Ciftin 500 mg 2x day sence Nove. and now I'm on 500 mg Biaxin 2xday. At least I can go out in the sun now.

I just don't seem to be gettine better. I understand it takes awhile, I'm tired of being sick. I just want to go on with my life.

At least sence I found this board and have been reading the posts sence Nov. I don't feel so alone. I try to find the positive, I sleep all night now and the night sweets have gone.

My joints just hurt so bad and I'm so tired. I guess i had expectations. Once I found a LLMD I would be better. I'm just feeling sorry for myself.
Thanks for listening.
 

Are you taking any supplements or treating for co-infections. The body gets depleted of a lot of magnesium. I take 600 MG of elemetal MG plus MSM glucosmaine complex every day. I swear it has helped my energy levels! Check to see if it's ok with your doc though.

I personally believe that co-infections need to be addressed as agressively as lyme.

I am from WI too - feel free to email me whenever you want. I'd like to hear your story!
 

You said your sweats, and sleep were better. Joint pain ? Try a hot bath in epsom salts, or have the doc change around your pain meds. The "keets" seem to get use to one pain med and they lose there effectiveness, so we kept switching.

Some here swear by sauna's to relieve pain, others mangosteen juice, some like podi patches. Make sure you're taking lot's of magnesium, good for the joints, helps with the inflammation. I sent you an e-mail as well to follow up. BTW, if you have any questions, post them in "Medical Questions" section and you'll get tons of responses.

Most lymenetters post there.
P.S. Have you been treated for babesia ? Many experience great improvement with lyme once they start babs treatment.
 

according to some on here , eating blueberries will cause a herx
 

...ditto to everyone elses posts...they are all really good suggestions.

I see the same LLMD as NP40's son...so I'm on the same track as where he's coming from.

Where are you located, as you may consider a change of LLMD, ours is really doing good stuff to alleviate my symptoms. (I travel about 2 hours oneway, but it's definately worth it, I was realieved to find there was a LLMD here "so close", as I was considering Dr C. in MO)

I, too, probably had gotten bit the first of many times, at least 8 years ago, or so. So,I know it's a long haul to get better. But I can actually say I feel positivly different then I have in a looooong time. I still have my bad days, but things are looking up!! (I just hate adnmitting that outloud, cuz you know what happens then!)

I was not dx'd til Jul or Aug '04 (pos WB) only after I ended up in the ER 3 nights in a row at the end of June (clinically dx'd by the ER doc, I felt like I was gonna die...I prob was, if I hadn't gone to the ER, I had been in bed for a week prior to that w/high fevers and oh such pain)...(went to lotsa ducks during those 8 years).

Then the ER doc told me I was going to get sicker before I got better, after those words, I was ready to cash it all in, I don't know if he knew how sick I felt but I didn't think I could feel any sicker and handle it! But I did, apparently, cuz I'm still here and coming back!

Didn't start PROPER Lyme tx til the end of Jan '05, because that was when I(with the help of the internet and Lymenet) finally found a LLMD.

I read (lurked) here for about 6 months, learning all kinds of stuff, before I posted.
Thanks Lymenet...you guys are the best support a Lymie could have

lr...e-mail me if you'd like, I'd love to hear 'your story' and if you want to hear it, I'll share mine with you But fair warning, when I'm having a not-so-bad of a day, I can get pretty long winded...Ha!

Take care, and better days are ahead!!!
~laserred~
 

[This message has been edited by laserred (edited 10 June 2005).]