LymeNet Flash: Deadline 30June for completing survey of Lyme parents falsely accused

This is topic Deadline 30June for completing survey of Lyme parents falsely accused in forum General Support at LymeNet Flash.

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Posted by Lymerayja (Member # 6839) on :

A survey is being conducted of parents who have been accused of "Munchausen's by proxy" or other accusations falsely blaming them for their child's illness. This is the first survey of its kind, and is open to parents regardless of whether the accusations led to action taken against the family, or were dropped.

If you have had an experience of this kind, please take time to complete the survey, as the more Lyme parents who participate, the more accurately it will reflect the problem facing Lyme parents when the results are published.

The survey, by distinguished MSBP expert Dr Helen Hayward-Brown, is anonymised and no identifying information will be used. You can access the survey online by clicking here:
http://surveys.uws.edu.au/msbp/fa.asp

It s a little complicated so please take time to read ths instructions carefully first. Also, although it is lengthy, you can complete one section and then return later (there are 2 mandatory and 1 optional section), but be sure to click the Submit button and receive the confirmatory "thank you" message before exiting or your entries may be lost.

Please act quickly as deadline is 30 June 2005.

Lisa

Posted by NP40 (Member # 6711) on :

^^^^^^^^^^^^

Posted by brainless (Member # 6771) on :

Before you provide such very personal information you should seriously investigate the people and the situation.

Even then, you have no idea how the information, held for all time, will be used.

Posted by Lymerayja (Member # 6839) on :

Brainless, Dr Hayward-Brown is a recognised expert on MSBP and one of the few professionals who have been brave enough to speak out victimisation of mothers with these false accusations (ILADS Dr Virginia Sherr is another one). Anyone can find out who she is and read the material she has published by googling for her name on the internet. She is also very open to people contacting her directly, as you will see from the piece below.

I take your point about people needing to be careful where they send personal info to, and where it may eventually end up. But I feel we have to strike a balance - if Lymies never confide in anyone, not even in those who are fighting a very public fight for their cause, then how will these issues ever get out in the public eye?

Remember that the names and any identifying information (email addresses etc) will be held totally confidential by Dr Hayward-Brown, a code number is used to identify each parent.
Lisa

FALSE ACCUSATIONS OF MUNCHAUSEN SYNDROME by PROXY

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presented by Dr Helen Hayward-Brown.

Based in Australia I completed my doctoral research in the social sciences (interdisciplinary: sociology, anthropology, psychology) on the subject of false accusations of Munchausen Syndrome by Proxy (MSBP). Accusations of MSBP have increased in the last ten years and many mothers are being falsely accused. Many of these accusations may occur after mothers make complaints about treatment, when children suffer side-effects from drugs, or when ex-husbands are accused of sexually abusing their children. Common patterns in these cases are fabrication of evidence against mothers, the tampering of files, inaccurate files or mixing of files with other children, and bad faith allegations following parental complaints.
If you would like further information or contact, please contact me on my email address: * [email protected]

quote:
Originally posted by brainless:
Before you provide such very personal information you should seriously investigate the people and the situation.
Even then, you have no idea how the information, held for all time, will be used.
b