This is topic Respiratory problems/Lyme in forum General Support at LymeNet Flash.


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Posted by Somerset (Member # 7534) on :
 
Good morning Everyone, Just curious,has anyone have any respiratory problems since having Lymes? I'd greatly appreciate any feedback. Robin Somerset
 
Posted by ArtistDi (Member # 2297) on :
 
Good morning, Robin. My first symptoms were
respiratory...turned into "asthma" or "asthma-like" condition. I was on all
kinds of asthma meds until I was treated for
lyme.

I still have periodic shortness of breath
and my peak flow is down from where it should
be. I keep hoping with the right treatment
that I will get better.
 


Posted by Melanie Reber (Member # 3707) on :
 
Good morning Robin,

Yes, I too have had many respiratory difficulties.
Lots of coughing, shortness of breath, chest congestion, allergies, sinus problems, asthma, etc.

I have had to use rescue inhalers for about a year and a half now. Before that, and before I knew I had TBDs, I only used an inhaler for exercise induced asthma.

I also get what seem to be allergy attacks out of nowhere now. I was never allergic to anything before TBDs got the best of me.

Some of it has subsided with lyme and Bartonella treatment, so I am hoping that eventually, this will fade away just as many other symptoms have.

Just a suggestion...if you will post your medical questions in the medical forum, you will most probably receive many more answers.

My best,
melanie

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]
 


Posted by Mathias (Member # 5298) on :
 
Yes, I was dx'ed and treated for asthma before I was dx'ed with lyme and a mycoplsama co-infection.
 
Posted by Biting Back (Member # 6018) on :
 
Yes! Went to Mayo Clinic 2 years ago with respiratory problems.

They told me (and I have the letter from the pulmonologist in hand), "Ms. _____ will be a good candidate for lung transplant/lung reduction surgery given her young age."

Also had a sleep study and the results? I should to be on mechanical ventilation!

They later retracted their diagnoses and sent me home to die. Why? They couldn't come up with a logical reason, let alone an accurate diagnosis.

Since I started treating lyme just 1 year ago I have no respiratory problems!
 


Posted by Lymetoo (Member # 743) on :
 
Wow, BB...that's incredible! Are you sure that "Lyme thing" isn't all in your head??!

I had a recent tick bite and ever since then I've had shortness of breath and was dxd with asthma. It was made worse by acid reflux gone out of control!

The tick was tested for Lyme and babesia and it came back negative, but SOMETHING'S going on here! &^%^$ ticks!

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu
 


Posted by Biting Back (Member # 6018) on :
 
Lymetoo,

It must have been all in my head because it's gone now that I'm taking antibiotics . . . you know, the placebo effect?
 


Posted by yankee in black (Member # 4309) on :
 
Hi Robin,

I didn't have much in the way of allergies prior to lyme--just some seasonal sufferings

During the course of the disease--I developed a slight case of asthma--made much worse when hubby was transfered to one of the most polluted cities in the USA

But it hit it's all time high when the mycoplasma Pnuemonia showed up--I actually had to go to the pulmonologist for that one

Sometimes the shortness of breath can be caused by acid reflex-- it's worth looking into--as many here have had that problem( I've got that goin' on right now)

Hey, LymeToo---any chance that tick could have been carrying some mycoplasmas???

BTW, Playing a doctor on T.V may actually pay more than being one in clinical practice!!

I'm sure Tom Cruise's next role will be playing a psychologist ( oh, ya--he doesn't believe in that field--it's "glib")


 


Posted by Somerset (Member # 7534) on :
 
Thanks everyone for all your responses,boy it's unreal how much we all have been through & how much we all have in common because of this Disease. I'm very GREATFUL I found this site. "Thank you all" Robin
 
Posted by bg (Member # 46416) on :
 
Hi Robin, yes, I have experienced with you/most of others posted here BEFORE my dx 7-04 after being misdx for 34 years. Extreme shortness of breath also.

Not sure if you've received the official welcome or not, so copying/pasting a little info here for you.

Welcome to this 24/7 educational & support group board!

Here's TREEPATROL's and TINCUP'S combination newbie links.
http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this.

print & read Dr. Barrascono's info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

Some guidelines from Betty/others on using this message board:

* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.

* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.

* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.

* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our eyes.

* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!

Bettyg
 


Posted by mlkeen (Member # 1260) on :
 
I too had "asthma" as an early symptom and shortness of breath all along-until my last llmd visit three weeks ago.

I mentioned to my llmd that I had what seemed like an asthma attack the week before, after not having one for several years. He said he could fix it right there in his office.

Now, as much as I trust this guy, I had alarm bells ringing all over the place. He explained that a German doc had discovered that muscle spasms can cause asthma, There is a muscle that runs from the back around to the front of the lungs and when it is spasming causes the nerves in that area to send mixed signals and triggers tightness in the lungs. Now, this isn't a medical explaination at all, but my re-telling of his explaination to me.

What he did was give me a shot of novacaine just below the shoulder blade on both sides in this muscle that should be be flat but was like a hot dog in me. I could literally feel the tighness melt away and my lungs open up. It was trully amazing. I have been breathing well for 3 weeks. More O in my body has meant better brain function and more energy.

He also said that my chiro is missing something if this muscle is spasming and needs to adjust me to correct this. I'll see him this week. We'll see what happens there.

My llmd said that he has been using this treatment on patients with asthma that requires an inhaler and their dependance has been reduced.

He told me all the details, but they were forgotten, I'll call the office sometime and get the details, on paper this time.

It is certainly a different approach to correcting the problem.

Mel
 




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