Sorry about your recent events.Tree has pulled up his info,read away,ask away.Welcome.

Find an LLMD,someone who can talk and listen to your concerns.You will get better.

Git er done.
 

I too, was misdiagnosed with FM....a long time ago. Finally found out I had Lyme 5 yrs ago. I've been successfully treated for the most part.

I've had some setbacks recently, but will bounce back eventually!

I love your strong, positive spirit! You will fit right in on Lymenet! We need you!

Now, about that weight gain....Lyme causes some people to become very thin and others gain weight.

You might want to consider the fact that you could also have systemic yeast. That will cause you to bloat and gain weight [especially since you will crave sweets and carbs if you have yeast].

So, check this out!
Candida elimination: http://flash.lymenet.org/ubb/Forum1/HTML/021412.html
Lyme symptoms list compared with yeast symptoms http://flash.lymenet.org/ubb/Forum1/HTML/021202.html

BTW, I'm really glad to hear that there's no Lyme in CA!!!! Yippeeee! Now all you folks from CA can leave!

There's not any Lyme in TX either, where I was tick bit hundreds of times!

OK...I'm rambling now...take care and have fun here!

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Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu
 

Hi girlfriend--so glad you found us!

We don't have any Lyme in East Tennessee either--all the ticks with Lyme ('cause we have a lot of ticks) stop at the Tennessee/Kentucky/Virginia/North Carolina border and don't come here. Apparently a few rabalrousers didn't get the word--cause my whole family has Lyme.

I immediately noticed your correct ussage of the word "ya'll" in your title--do you have southern roots?

Whatever your roots we are glad to have you and hope we can help you and hopefully you can pas it on to so many others that are undiagnosed.

WELCOME!

L

 

Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.

print & read Dr. B's (a lyme literate MD) info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

Some guidelines from Betty/others on using this message board:

* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.

* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.

* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.

* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.

* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!
*
* LYME SYMPTOMS - http://www.lyme.org/otherdis/ld_symptoms.html
Bettyg, Iowa
 

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Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu
 

The one I went to told me I had sleep apnea (I've gained about 50 pds also. But have no sleep apnea symptoms - just can't fall asleep or stay asleep), rosacea, anxiety (that is the one thing all doctors like to blame - your anxiety and/or depression - guess it's easier to blame you than to say 'I don't know') and allergies. ???? I went to my appointment with about 3 pages typed of around 40+ symptoms.

He said no way you have Lyme. You don't have a rash and you didn't test positive with Labcorp....

I went 2 yrs (15 doctors) before getting diagnosed. I had to diagnose myself and found a LLMD from someone on Lymenet and was finally diagnosed by a doctor! I was relieved to have Lyme (isn't that sad?)!

Of course my health insurance does not cover our LLMD or Igenex.

I also was misdiagnosed with FMS 1/2 way through my ordeal.

My husband has just started showing symptoms for about a year now. I am 99.9% sure he got Lyme from me, not from a tick.

I think you would really enjoy Dr Wiseass' blog/site. You can start at her first blog (1st previous post Once Upon a Time, a Woman got Lyme) to understand all that she's been through. It is really funny (and sad since most of us have gone through the same crud she has). She has become a dear friend of mine. You will get many laughs from her writing.
http://twistoflyme.blogspot.com/

 

Thank you so much for the responses! Tree, I plan in taking a long time to go through that great list you gave me. And Betty, thanks for the guidelines.

Already I have managed to meet a Real Live Person With Lyme today who lives in my town. Also, I have an appointment with a LLMD next Tuesday! Wahoo! I wonder what it will be like to talk to a doctor who won't think I'm a crazy medical mystery.

Lymetoo - You know, I have to thank you for reminding me about systemic yeast. I am 100 percent sure I have a raging candida problem. A few months after my weird symptoms started, I will never forget this because it was Halloween and we had bags of chocolate left over, I developed an insatiable need to ingest massive quantities of chocolate.

Kit-Kats were my drug of choice, but I wasn't particular. I just couldn't stop eating it. I was like that monster in Men In Black that lands on that farmhouse, kills a guy and wears his skin, and staggers around New York screaming "Sugar! Shuuuuugarrrrrrr! . . . In the back of my head I was thinking to myself, hmmm, this doesn't seem normal. Those yeasties love them their sugar.

LindaLD -- I'm not originally from the South but I did live there for awhile as a child, so I can whip out a Southern acccent and yes, "y'all" somehow became ingrained in my vocabulary even though when I say it here in California it tends to elicit strange looks, to which I reply, "What? All y'all never heard anyone say 'y'all'?"

Ok, a quick question. When I go see the LLMD for the first time, is there a list of specific tests I should ask him for? As it stands, I am going to ask for the Bowen test and also testing for mycoplasma. Should I also ask for tests for ....the whaddayacallem's like babesia, erlichia, bart . . . etc? Even though I'm asking for Bowen's Q-RiBb, should I also ask for the Igenex Western Blot in addition? Basically, which tests should I have first in addition to Lyme tests?

You guys are so great. I have so many great leads on doctors now. Before I found this site I only had one name of a doctor who wasn't taking new patients, Dr. S. His office called me today and told me that Dr. G would see me but it would cost $600!!!! Yipes!

Ok, well looks like I've gots me some reading to do with all the great links you guys gave me . . .

*contorts face in serious expression and whips out highlighter determinedly*

Cheers,

Alison
 

Love,
Angela http://www.angelfire.com/nj/lorib/
 

bettyg, Iowa
 

I find it interesting that you don't have Lyme disease in Cali - yet you've already found a real live Lymie friend in Cali....how weird is that?

Also I find it weird that you're a Californian that knowns how to play Texas Hold'Em and I'm a Texan that doesn't know didly squat about it.

Hey Jill honey - your such a sweet talker!

Hugs & Kisses,

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DR. Wiseass - not a real doc - just a real wise ass.
www.twistoflyme.blogspot.com
 

I just started reading your blog. It is so refreshing to cry tears of laughter for a change as opposed to those of pain (like I did tonight at a wedding wearing the wrong shoes..what was I thinking -- oh God, the horror, I could barely walk I was in so much pain...step...whimper...step...whimper). I absolutley love your writing. I can't wait to read the whole thing!

Yes, it's amazing to have met and know about so many people in California with Lyme. I'm trying to figure out how to get the word out that there's no Lyme in California and that it's only an East Coast problem, and a small one at that (Ha ha ha ha ha ha). When I heard that ID doctor say that, my eyes just about rolled up into my head as I wondered how much he spent on medical school.

The kicker for me was when he heard about my 50 pound weight gain and told me helpfully that I could lose weight by eating less (wow is he brilliant). As I'm sitting there staring at his big pot belly, I thank the heavans that I never decided to go to medical school.

Yes...the Texas Hold 'em. My husband brought out some poker chips, thinking he would whup me and I cleaned him out! I got really hooked on the celebrity poker...I had the hugest TV crush on Phil Gordon for awhile. I can't wait to see what new skills my next TV obsession will bring . . .

Alison
 

CALDA California Lyme Disease Assoc.