You may also mail your letter to:
Letters to the Editor
The New York Times
229 West 43rd Street
New York, NY 10036
Science Editor
The New York Times
229 West 43rd Street
New York, New York 10036-3959
Email: [email protected]
If you want to copy Mr. Hurley so he can see your
letters, his email
is: [email protected]
Posted by NP40 (Member # 6711) on :
Kicking this up, so others can e-mail as well.
Posted by JillF (Member # 5553) on :
List of all the email address for NY Times(editor, publisher, president, etc and includes Mr. Hurley):
[email protected],
[email protected],
[email protected],
[email protected],
[email protected],
[email protected],
[email protected],
[email protected],
[email protected],
[email protected]
Posted by Lishs mom (Member # 2344) on :
BE SURE TO PUT IN THE DATE, AUTHOR and TITLE of the article in your letters.
Posted by Lishs mom (Member # 2344) on :
ALSO: CC your senator and representative!
copy of my letter
Re: Unproved Lyme Disease Tests Prompt Warnings
Reprints
By DAN HURLEY and MARC SANTORA
Published: August 23, 2005
Dear Editor,
My daughter had been tested for everything under the sun. Labs such as Labcorp and Quest, often report false positive or false negative tests, as they are not as specific as speciality labs who do thousands of tests on patients who have clinical presentations for specific disorders. According to Quest and LabCorp, our daughter showed auto-immune disorders and did not show Lyme Disease. Her rheumatologist used a specialty research lab in Oklahoma because this lab confirms/rejects auto-immmune disorders. She did NOT have auto-immune disorders. (Research laboratories do not even require CLIA certification). He had to assume active infection.
Other tests done by several speciality laboratories,including IgeneX, for different infective agents, at the request of my physician all came back with positive B.burgerdorferi, and Ehrlichia. Other infections tested for were negative.
Your article states that Quest 'runs a majority of tests', however the context implies "for Lyme Disease". Yes they run a majority of tests, but are not qualified in all spectrums on Lyme Disease, since they do not test for variant strains or the full panel including the outer surface protiens, OSPA or OSPC (band 31,34).
My daughter by Quest had an autoimmune disorder (and not Borellia Burgerdorferi), and by the test in Oklahoma who specialized in autoimmune disorders,she did not have an auto immune disorder! Four other labs did however confirm she did have Borrelia.
Since her diagnosis at age 14, she has gone from wheelchair/bedridden to rock climbing at age 17, thanks to specialty laboratories who know their stuff and doctors willing to treat.
Doctors of all walks (neuro, cardio, ortho etc) very often, will use speciality labs for OTHER conditions, why not tick borne illness?
Your article, trying to shut down inclusive testing lyme laboratories such as IgeneX, may hurt thousands of patients. It is a shame when science and medical advancements get muddled with MD pride,unprofessionalism and politics.
Posted by Lymetoo (Member # 743) on :
quote:
Originally posted by Lishs mom:
Doctors of all walks (neuro, cardio, ortho etc) very often, will use speciality labs for OTHER conditions, why not tick borne illness?Your article, trying to shut down inclusive testing lyme laboratories such as IgeneX, may hurt thousands of patients. It is a shame when science and medical advancements get muddled with MD pride,unprofessionalism and politics.
Excellent letter! I especially liked the above!
------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu
Posted by Lyddie on :
In general, the best way to get published is to be as brief as possible.
(Lish's Mom, this isn't directed at your excellent letter, just general advice from experience for anyone trying to get a letter in)
Posted by ellenluba (Member # 1707) on :
Please keep copies of the letters you write. I have a funny feeling that there will be more writing in store for us pretty soon.
Ellen